Article 19: Deinstitutionalization and Full Inclusion in Community

  • Reference work entry
  • First Online:
Handbook of Disability
  • 89 Accesses

Abstract

One of the fundamental requirements for the successful deinstitutionalization of persons with disabilities (PwD) is a robust and well-resourced strategy to support their inclusion and independence in the community. A crucial element of this strategy involves the removal of legal barriers that limit their autonomy and independence. However, in many of the jurisdictions where deinstitutionalization has begun, it has become clear that government efforts to remove these barriers have fallen woefully short. This chapter will provide illustrative examples of some of the ongoing legal barriers to the inclusion and independence of PwD in Canada, as well as some of the advocacy efforts being made to remove these barriers. Some of the issues this chapter will briefly cover include: (a) accessibility in housing; (b) gaps in the right to security of tenure for PwD; (c) problems associated with complaint mechanisms around the quality of services and support PwD receive; and (d) some of the common forms of discrimination persons with disabilities experience in the area of housing and independent living. In covering these issues, this chapter will use Article 19 of the CRPD to both critique these barriers and to illustrate what the CRPD requires of States Parties when it comes to promoting the independence and inclusion of PwD in the community.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Institutional subscriptions

Notes

  1. 1.

    These obviously represent just two problems among many in the National Building Code. A number of other notable problems exist. For example, one critique of the current standards is that only a portion of persons with disabilities are addressed by the current standards, as these requirements are primarily based on the dimensions required for people who use manual wheelchairs.

  2. 2.

    Adaptable housing is housing that can be easily renovated to improve accessibility at minimal cost. As noted above, one of the primary housing challenges many persons with physical disabilities experience is related to the evolution of their disability, and the potential that they will experienced increased accessibility needs. In many cases, they may be in housing which is either expensive or impossible to renovate. Adaptable housing is designed to address this issue by including structural features within the housing that minimizes the cost of renovation and maximizes the type of accessibility-related features that could be implemented.

  3. 3.

    It is worth emphasizing here that the same is unlikely to be true of the Charter in this circumstance. Indeed, the author has previously done work which suggests that a Charter challenge on the basis of s. 7 and s. 15 has the potential to broadly challenge some of the accessibility barriers currently embedded in the NBC.

  4. 4.

    It should be emphasized that this statement also applies to British Columbia as well. While the report emphasizes that the relationship in assisted living is a landlord-tenant relationship, assisted living arrangements “are not currently governed by the Residential Tenancy Act, which governs most rentals of living accommodations in British Columbia.” (p. 23)

  5. 5.

    In practice, it can be quite difficult to determine which housing/service providers actually qualify for this exemption as this is typically seen as a factual issue that must be decided on a case-by-case basis. See: Smith v. Youthlink Youth Services, 2020 ONSC 7624 (CanLII) at para 47; YWCA NWT v Hashi, 2021 NWTSC 15 (CanLII).

  6. 6.

    At times, this type of eviction may result not in an individual becoming homeless, but instead in greater institutionalization. Persons with disabilities may be “discharged” from a more inclusive community-based setting to a more institutional setting based on their perceived level of need (e.g., a nursing home).

  7. 7.

    For example, see: SOL-94702-18-RV (Re), 2018 CanLII 141,507 (ON LTB) (Failure to inquire about accommodation needs prior to applying for eviction); Erika v. David, 2003 HRTO 13 (CanLII) (Imposition of extra conditions on tenancy because of disability); Devoe v. Haran, 2012 HRTO 1507 (CanLII) (failure to properly engage in accommodation process); Cityviews Village Inc. v. [tenant], RTB (BC) Decision No. 6020 (2021) (Landlord pressuring tenant with disability to move out); TEL-92935-18 (Re), 2019 CanLII 86,868 (ON LTB) (Landlord not engaging in accommodation process); TEL-81015-17-RV (Re), 2018 CanLII 111,868 (ON LTB) (Landlord failed to inquire about accommodation needs prior to applying for eviction); SOL-66034-15-SA (Re), 2016 CanLII 44,564 (ON LTB) (Landlord failure to provide accommodation to the point of undue hardship); SWT-97811-16 (Re), 2017 CanLII 48,795 (ON LTB) (Landlord failed to inquire about accommodation needs).

  8. 8.

    Examples: TSL-46861-13 (Re), 2014 CanLII 23631 (ON LTB) (No reference by LTB to factors to be considered in undue hardship analysis in eviction hearing); McKenzie v. Supportive Housing in Peel, 2005 CanLII 12858 (ON SCDC) (LTB decision did not consider Code obligations in eviction hearing); Bronson v. Kingston and Frontenac Housing Corporation, 2014 HRTO 619 (CanLII) (LTB did not consider accommodation issue regarding a rental subsidy in eviction hearing); Walmer Developments v. Wolch, 2003 CanLII 42163 (ON SCDC) (LTB failed to consider landlords obligation to accommodate in eviction hearing); Ramadhin v. Chavali, 2014 HRTO 866 (CanLII) (LTB mediator advised applicant he could not raise human rights issues at LTB eviction hearing); N.K. v. The Owners, Strata Plan LMS YYYY, 2018 BCCRT 108 (CanLII) (refusal to allow occupant to keep support animal – failure to apply test for discrimination); Sharp v. The Owners, Strata Plan BCS 435, 2020 BCCRT 1142 (CanLII) (Failure to properly apply test for discrimination and burden of proof); Metro Vancouver Housing Corporation v. [tenant], RTB (BC) Decision No. 6022 (2020) (No human rights analysis – tenants evicted because of noise from child with a disability); TST-32086-12-RV (Re), 2015 CanLII 71788 (ON LTB) (Failure of LTB to consider Code related issues at eviction hearing); SWL-13871-18 (Re), 2018 CanLII 42924 (ON LTB) (Failure to consider code related obligations in LTB eviction decision); TSL-67255-15-RV2 (Re), 2016 CanLII 39865 (ON LTB) (Failure to reference Code obligations for procedural accommodations).

References

  • Advocacy Centre for Tenants Ontario. (2021). Digital Evictions: The Landlord and Tenant Board’s experiment in online hearings.

    Google Scholar 

  • Alzheimer Society of Canada, ARCH Disability Law Centre, Canadian Association for Community Living, et al. (2017). Meeting Canada’s Obligations to Affordable Housing and Supports for People with Disabilities to Live Independently in the Community: Under Articles 19 and 28, Convention on the Rights of Persons with Disabilities. Available online at: https://inclusioncanada.ca/wp-content/uploads/2018/05/Canada-Right-to-Housing-for-Persons-with-Disabilities-May-15-2017.pdf

  • Aplin, T., de Jonge, D., & Gustafsson, L. (2015). Understanding home modifications impact on clients and their family’s experience of home: A qualitative study. Australian Occupational Therapy Journal, 62(2), 123–131.

    Article  Google Scholar 

  • ARCH Disability Law Centre. (2020). Connecting people to home and community care: Survey results. Accessed at: https://archdisabilitylaw.ca/connecting-people-to-home-and-community-care-survey-results/

  • Archer, J. W. (2003). A brief history of the National Buildings Code of Canada. Online at: National Research Council of Canada at p. 1.

    Google Scholar 

  • Aubry, T., Ecker, J., & Jetté, J. (2014). Supported housing as a promising housing first approach for people with severe and persistent mental illness. In M. Guirguis-Younger, R. McNeil, & S. W. Hwang (Eds.), Homelessness and health. University of Ottawa Press.

    Google Scholar 

  • British Columbia Law Institute & Canadian Centre for Elder Law. (2013). Report on Assisted Living in British Columbia at p. 23.

    Google Scholar 

  • Burns, S. P., Mendonca, R., Pickens, N. D., & Smith, R. O. (2021). America’s housing affordability crisis: Perpetuating disparities among people with disability (pp. 1–6). Disability & Society.

    Google Scholar 

  • Canadian Commission on Building and Fire Codes. (2020). Final Report – Alterations to Existing Buildings: Joint CCBFC/PTPACC Task Group on Alterations to Existing Buildings (National Research Council).

    Google Scholar 

  • Canadian Commission on Building and Fire Codes (CCBFC). (2021). Policy paper: Accessibility in buildings. CCBFC.

    Google Scholar 

  • Carnemolla, P., & Bridge, C. (2016). Accessible housing and health-related quality of life: Measurements of outcomes following home modifications. International Journal of Architectural Research, 10(2), 38–51.

    Google Scholar 

  • Carter, M. (2010). How evictions from subsidized housing routinely violate the rights of persons with mental illness. Northwestern Journal of Law & Social Policy, 5, 118.

    Google Scholar 

  • Chipeur, S. (2021). Inaccessibility and the law of the built environment: Understanding people with disabilities as members of the public (dissertation) [unpublished].

    Google Scholar 

  • Close, J., et al. (1999). Prevention of falls in the elderly trial (PROFET): A randomised controlled trial. The Lancet, 353(9147), 93–97.

    Google Scholar 

  • Committee on Economic, Social, and Cultural Rights. (1991). General Comment No. 4: The Right to Adequate Housing (Art. 11 (1) of the Covenant).

    Google Scholar 

  • Britain, G. (2015). The building regulations 2010: Access to and use of dwellings: Approved document M. RIBA Enterprises.

    Google Scholar 

  • Joffe, K. (2010). Enforcing the rights of people with disabilities in Ontario’s developmental services system. The Law as it affects persons with disabilities (p. 28). Law Commission of Ontario. At: http://www.lco-cdo.org/wp-content/uploads/2010/11/disabilities_joffe.pdf

    Google Scholar 

  • Lantz, S., & Fenn, D. (2017). Re-sha** the housing market for aging in place and home modifications. Canadian Home Builders Association.

    Google Scholar 

  • Lau, G. W. C., Yu, M. L., Brown, T., & Locke, C. (2018). Clients’ perspectives of the effectiveness of home modification recommendations by occupational therapists. Occupational Therapy in Health Care, 32(3), 230–250.

    Article  Google Scholar 

  • Law Commission of Ontario. (2017). Legal capacity, decision-making and guardianship: Final report, March, 2017. p. 74. Accessed at: http://www.lco-cdo.org/wp-content/uploads/2017/03/CG-Final-Report-EN-online.pdf

  • Legislative Assembly of Ontario. (2014). Select Committee on Developmental Services final report inclusion and opportunity: A new path for developmental services in Ontario. p. 3. Accessed at: https://www.ola.org/sites/default/files/node-files/committee/report/pdf/2014/2014-07/report-1-EN-SCDSFinalReportEnglish.pdf

  • Lepofsky, D. (2004). The long, arduous road to a barrier- free Ontario for people with disabilities: The history of the Ontarians with disabilities act – The first chapter. National Journal of Constitutional Law, 15, 125.

    Google Scholar 

  • Lightman, E. S. (1990). A community of interests: The report of the Commission of Inquiry into Unregulated Residential Accommodation. Government of Ontario.

    Google Scholar 

  • Mahoney, E. (1997). Disabling tenants’ rights. Osgoode Hall Law Journal, 35, 711.

    Article  Google Scholar 

  • Ministry of Housing. (2016). Legislative framework for transitional housing under the residential tenancies act 2006. Government of Ontario.

    Google Scholar 

  • Mosoff, J. (2000). Is the human rights paradigm ‘able’ to include disability: Who’s in? Who wins? What? Why? Queen’s Law Journal, 26, 225.

    Google Scholar 

  • National Housing Administration, & National Research Council. (1941). National Building Code (p. 10). National Research Council of Canada.

    Google Scholar 

  • National Research Council. (2020). Model code adoption across Canada. NRC.

    Google Scholar 

  • Onley, D. (2019). Listening to Ontarians with disabilities: Report of the third review of the Accessibility for Ontarians with Disabilities Act, 2005 (p. 5). Government of Ontario.

    Google Scholar 

  • Peisah, C., Chiu, H., & Shulman, K. (2017). Capacity assessment. Mental health and illness worldwide: Mental health and illness of the elderly. Springer HbMIE.

    Google Scholar 

  • Plouin, M., Adema, W., Fron, P., & Roth, P. M. (2021). A crisis on the horizon: Ensuring affordable, accessible housing for people with disabilities. OECD Social, Employment and Migration Working Papers, No. 261, OECD Publishing, Paris. https://doi.org/10.1787/306e6993-en

  • Public Health Agency of Canada. (2005). Report on seniors’ falls in Canada. Minister of Public Works and Government Services Canada.

    Google Scholar 

  • Scuffham, P., Chaplin, S., & Legood, R. (2003). Incidence and costs of unintentional falls in older people in the United Kingdom. Journal of Epidemiology & Community Health, 57(9), 740–744.

    Article  Google Scholar 

  • Spagnuolo, N. (2016). Building backwards in a ‘post’ institutional era: Hospital confinement, group home eviction, and Ontario’s treatment of people labelled with intellectual disabilities. Disability Studies Quarterly, 36, 4.

    Google Scholar 

  • Stanton, T. (2016). Supported decision-making in Canada: Principles, policy, and practice. Research and practice in Intellectual and developmental Disabilities, 3(1), 1–11.

    Article  Google Scholar 

  • UN Committee on the Rights of Persons with Disabilities (UNRPD). (2017). General comment No. 5 on living independently and being included in the community 27 October 2017 CRPD/C/GC/5. p. 19.

    Google Scholar 

  • UN Committee on the Rights of Persons with Disabilities (UNRPD). (2022). Guidelines on deinstitutionalization, including in emergencies, 9 September 2022 CRPD/C/27/3. pp. 60–62.

    Google Scholar 

  • UN Committee on the Rights of Persons with Disabilities (UNRPD), General comment No. 1. (2014). Article 12: Equal recognition before the law, 19 May 2014 CRPD/C/GC/1. p. 44.

    Google Scholar 

  • UN General Assembly. (2007). Convention on the Rights of Persons with Disabilities: Resolution/adopted by the General Assembly, 24 January 2007, A/RES/61/106 at art. 19.

    Google Scholar 

  • White, G. W., Paine-Andrews, A., Mathews, R. M., & Fawcett, S. B. (1995). Home access modifications: Effects on community visits by people with physical disabilities. Journal of Applied Behavior Analysis, 28(4), 457–463.

    Article  Google Scholar 

  • Wiesel, I. (2020). Living with disability in inaccessible housing: Social, health and economic impacts. University of Melbourne. Online (pdf).

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Luke Reid .

Editor information

Editors and Affiliations

Section Editor information

Rights and permissions

Reprints and permissions

Copyright information

© 2024 Springer Nature Singapore Pte Ltd.

About this entry

Check for updates. Verify currency and authenticity via CrossMark

Cite this entry

Reid, L., Lattanzio, R. (2024). Article 19: Deinstitutionalization and Full Inclusion in Community. In: Rioux, M.H., Buettgen, A., Zubrow, E., Viera, J. (eds) Handbook of Disability. Springer, Singapore. https://doi.org/10.1007/978-981-19-6056-7_79

Download citation

Publish with us

Policies and ethics

Navigation