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Health-Related Quality of Life and Inflammatory Bowel Disease

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Encyclopedia of Quality of Life and Well-Being Research

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Synonyms

Cleveland Clinic IBD Scale; Crohn’s disease; Inflammatory Bowel Disease Questionnaire (IBDQ); Rating Form of IBD Patient Concerns (RFIPC); Ulcerative colitis; Ulcerative Colitis and Crohn’s Disease Health Status Scales (UC/CD HSS)

Definition

Inflammatory bowel diseases include Crohn’s disease (CD), ulcerative colitis (UC), and inflammatory bowel disease unclassified, a disease with features of both CD and UC. These are chronic inflammatory gastrointestinal diseases of unknown etiology, characterized by episodes of remissions and relapses. The peak incidence of IBD occurs at 15–25 years of age, and 30% of the patients are diagnosed before age 21 (Karwowski et al. 2009; Stenson 2008).

As UC affects the rectum and a variable extent of the colon, CD can involve any part of the gastrointestinal tract. In UC, the most pronouncing symptom is diarrhea that is often associated with rectal bleeding and abdominal cram** during bowel movements. Systemic symptoms, such as weight loss,...

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References

  • Baumgart, D. C., & Sandborn, W. J. (2007). Inflammatory bowel disease: Clinical aspects and established and evolving therapies. Lancet, 369, 1641–1657.

    Article  Google Scholar 

  • Berndtsson, I., Lindholm, E., Öresland, T., & Börjesson, L. (2007). Long-term outcome after ileal pouch-anal anastomosis: Function and health-related quality of life. Diseases of the Colon and Rectum, 50, 1545–1552.

    Article  Google Scholar 

  • Casellas, F., López-Vivancos, J., Casado, A., & Malagelada, J.-R. (2002). Factors affecting health-related quality of life of patients with inflammatory bowel disease. Quality of Life Research, 11, 775–781.

    Article  Google Scholar 

  • Cohen, R. D. (2002). The quality of life in patients with Crohn’s disease. Alimentary Pharmacology & Therapeutics, 16, 1603–1609.

    Article  Google Scholar 

  • Drossman, D. A., Patrick, D. L., Mitchell, C. M., Zagami, E. A., & Appelbaum, M. I. (1989). Health-related quality of life in inflammatory bowel disease. Functional status and patient worries and concerns. Digestive Diseases and Sciences, 34, 1379–1386.

    Article  Google Scholar 

  • Drossman, D. A., Leserman, J., Li, Z., Mitchell, C. M., Zagami, E. A., & Patrick, D. L. (1991). The rating form of IBD patient concerns: A new measure of health status. Psychosomatic Medicine, 53, 701–712.

    Article  Google Scholar 

  • Graff, L. A., Walker, J. R., Clara, I., Lix, L., Miller, N., Rogala, L., et al. (2009). Stress co**, distress, and health perceptions in inflammatory bowel disease and community controls. American Journal of Gastroenterology, 104, 2959–2969.

    Article  Google Scholar 

  • Griffiths, A. M., Otley, A. R., Hyams, J., Quiros, A. R., Grand, R. J., Bousvaros, A., et al. (2005). A review of activity indices and end points for clinical trials in children with Crohn’s disease. Inflammatory Bowel Diseases, 11, 185–196.

    Article  Google Scholar 

  • Guyatt, G., Mitcell, A., Irvine, E. J., Singer, J., Williams, N., Goodacre, R., et al. (1989). A new measure of health status for clinical trials in inflammatory bowel disease. Gastroenterology, 96, 804–810.

    Article  Google Scholar 

  • Haapamäki, J. (2011). Health-related quality of life, symptoms and comorbidity in inflammatory bowel disease. Thesis, Helsinki University. Accessed 26 Sept 2019, from http://urn.fi/URN:ISBN:978-952-10-6808-9

  • Haapamäki, J., Heikkinen, E., Sipponen, T., Roine, R. P., & Arkkila, P. (2018). The impact of an adaptation course on health-related quality of life and functional capacity of patients with inflammatory bowel disease. Scandinavian Journal of Gastroenterology, 53, 1074–1078.

    Article  Google Scholar 

  • Irvine, E. J., Feagan, B., Rochon, J., Archambault, A., Fedorak, R. N., Groll, A., et al. (1994). Quality of life: A valid and reliable measure of therapeutic efficacy in the treatment of inflammatory bowel disease. Gastroenterology, 106, 287–296.

    Article  Google Scholar 

  • Irvine, E. J., Yeh, C.-H., Ramsey, D., Stirling, A. L., & Higgins, P. D. R. (2008). The effect of mesalazine therapy on quality of life in patients with mildly and moderately active ulcerative colitis. Alimentary Pharmacology & Therapeutics, 28, 1278–1286.

    Article  Google Scholar 

  • Karwowski, C. A., Keljo, D., & Szigethy, E. (2009). Strategies to improve quality of life in adolescents with inflammatory bowel disease. Inflammatory Bowel Diseases, 15, 1755–1764.

    Article  Google Scholar 

  • Klare, P., Nigg, J., Nold, J., Haller, B., Krug, A. B., Mair, S., et al. (2015). The impact of a ten-week physical exercise program on health-related quality of life in patients with inflammatory bowel disease: A prospective randomized controlled trial. Digestion, 91, 239–247.

    Article  Google Scholar 

  • Kunz, J. H., Hommel, K. A., & Greenley, R. N. (2010). Health-related quality of life of youth with inflammatory bowel disease: A comparison with published data using the PedsQL 4.0 generic core scales. Inflammatory Bowel Diseases, 16, 939–946.

    Article  Google Scholar 

  • Mitchell, A., Guyatt, G., Singer, J., Irvine, E. J., Goodacre, R., Tompkins, C., et al. (1988). Quality of life in patients with IBD. Journal of Clinical Gastroenterology, 10, 306–310.

    Article  Google Scholar 

  • Öresland, T., Fasth, S., Nordgren, S., & Hultén, L. (1989). The clinical and functional outcome after restorative proctocolectomy. A prospective study in 100 patients. International Journal of Colorectal Disease, 4, 50–56.

    Article  Google Scholar 

  • Otley, A. R., Griffiths, A. M., Hale, S., Kugathasan, S., Pfefferkorn, M., Mezoff, A., et al. (2006). Health-related quality of life in the first year after a diagnosis of pediatric inflammatory bowel disease. Inflammatory Bowel Diseases, 12, 684–691.

    Article  Google Scholar 

  • Pace, F., Molteni, P., Bollani, S., Sarzi-Puttini, P., Stockbrügger, R., Bianchi Porro, G., et al. (2003). Inflammatory bowel disease versus irritable bowel syndrome; A hospital-based, case–control study of disease impact on quality of life. Scandinavian Journal of Gastroenterology, 38, 1031–1038.

    Article  Google Scholar 

  • Saarni, S., Härkänen, T., Sintonen, H., Suvisaari, J., Koskinen, S., Aromaa, A., et al. (2006). The impact of 29 chronic conditions on health related quality of life: A general population survey in Finland using 15D and EQ-5D. Quality of Life Research, 15, 1403–1414.

    Article  Google Scholar 

  • Stenson, W. F. (2008). Inflammatory bowel diseases. In L. Goldman & D. Ansiello (Eds.), Cecil medicine (23rd ed., pp. 1042–1050). Philadelphia: Saunders Elsevier.

    Google Scholar 

  • Timmer, A., Preiss, J. C., Motscall, E., Rucker, G., Jantschek, G., & Moser, G. (2011). Psychological interventions for treatment of inflammatory bowel disease. Cochrane Database of Systematic Reviews, 2, CD006913.

    Google Scholar 

  • Yacavone, R. F., Locke, G. R., Provenzale, D. T., & Eisen, G. M. (2001). Quality of life measurement in gastroenterology: What is available? American Journal of Gastroenterology, 96, 285–297.

    Article  Google Scholar 

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Author information

Authors and Affiliations

  1. Department of Gastroenterology, Helsinki University Central Hospital, Helsinki, Finland

    Johanna Haapamäki

Authors
  1. Johanna Haapamäki
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Correspondence to Johanna Haapamäki .

Editor information

Editors and Affiliations

  1. Dipartimento di Scienze Statistiche, Sapienza Università di Roma, Roma, Italy

    Filomena Maggino

Section Editor information

  1. Departamento de Kinesiologia, Facultad de Ciencias de la Salud, Universidad de Atacama, Copiapó, Region de Atacama, Chile

    Aldo R. Vera-Calzaretta PhD

  2. Research Office, Teaching Assistance Unit, Universidad de Concepción, Las Higueras Hospital, Talcahuano, Universidad de Concepcion, Talcahuano, Región del Bio Bio, Chile

    Aldo R. Vera-Calzaretta PhD

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Haapamäki, J. (2021). Health-Related Quality of Life and Inflammatory Bowel Disease. In: Maggino, F. (eds) Encyclopedia of Quality of Life and Well-Being Research. Springer, Cham. https://doi.org/10.1007/978-3-319-69909-7_3838-2

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  • DOI: https://doi.org/10.1007/978-3-319-69909-7_3838-2

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  • Print ISBN: 978-3-319-69909-7

  • Online ISBN: 978-3-319-69909-7

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