Abstract
Research projects with Tuberculosis clinical data generate large volumes of complex data, requiring sophisticated tools to create processing pipelines to extract meaningful insights. However, creating this type of tool is a complex and costly task, especially for researchers who need to gain experience with technology or statistical analysis. In this work, we present a web portal that can connect to any database, providing easy access to statistical analysis of the clinical data in real-time using charts, tables, or any other data visualization technique. The tool is user-friendly and customizable, reaching the project’s needs according to its particularities. The developed portal in this work was used as a use case for the research project developed by the Federal University of Rio de Janeiro (UFRJ) for the validation and cost of performance of the Line Probe Assay 1 and 2 (LPA) as a method of diagnosing resistant Tuberculosis in Brazilian’s reference centers. In the use case, the tool proved to be a valuable resource for researchers, bringing efficiency and effectiveness in analyzing results for quick and correct clinical data interpretation.
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References
Rodrigues, R.J., Gattini, C.H.: Chapter 2 - National Health Information Systems and Health Observatories. In: Global Health Informatics: How Information Technology Can Change Our Lives In A Globalized World, pp. 14–49. Elsevier (2016)
Yoshiura, V.T.: Desenvolvimento de um modelo de observatório de saúde baseado na web semântica: o caso da rede de atenção psicossocial. Ph.D. thesis, University of São Paulo, Brazil (2020)
World Health Organization - Guide for the establishment of health observatories. https://apps.who.int/iris/handle/10665/246123. Accessed 03 Mar 2023
**ao, L., Dasgupta, S.: Chapter 11 - User satisfaction with web portals: An empirical study. In: Web systems design and online consumer behavior, pp. 192–204. IGI Global (2005)
Bernardi, F.A., et al.: A proposal for a set of attributes relevant for Web portal data quality: The Brazilian Rare Disease Network case. Procedia Comput. Sci. (in press)
Oliveira, D.P.R.: Planejamento estratégico: conceitos, metodologia e práticas, 23rd edn. Editora Atlas, São Paulo (2007)
Alves, D., et al.: Map**, infrastructure, and data analysis for the Brazilian network of rare diseases: protocol for the RARASnet observational cohort study. JMIR Res. Protoc. 10(1), e24826 (2021)
World Health Organization. Regional Office for Africa. Guide for the establishment of health observatories. World Health Organization. Regional Office for Africa. https://apps.who.int/iris/handle/10665/246123. Accessed 03 Mar 2023
Pereira, B.S., Tomasi, E.: Instrumento de apoio à gestão regional de saúde para monitoramento de indicadores de saúde. Epidemiol. Serv. Saúde 25(2), 411–418 (2016)
Nahm, E.S., Preece, J., Resnick, B., Mills, M.E.: Usability of health Web sites for older adults: a preliminary study. CIN: Comput. Inf. Nurs. 22(6), 326–334 (2004)
Saeed, M., Ullah, S.: Usability Evaluation of a Health Web Portal. Master’s thesis, Blekinge Institute of Technology, MSC-2009:16 Ronneby (2009)
World Health Organization (WHO). Global Tuberculosis Report 2018. Geneva: WHO. 2018. https://apps.who.int/iris/handle/10665/274453. Accessed 03 Mar 2023
Macedo, L.R., Maciel, E.L.N., Struchiner C.J.: Populações vulneráveis e o desfecho dos casos de tuberculose no Brasil. Ciênc saúde coletiva [Internet]. (Ciênc. saúde coletiva) (2021). https://doi.org/10.1590/1413-812320212610.24132020
Rabahi, M.F., et all. Tuberculosis treatment. Jornal Brasileiro de Pneumologia (2017). https://doi.org/10.1590/S1806-37562016000000388
Sales, O.M.M., Bentes, P.V.: Tecnologias digitais de informação para a saúde: revisando os padrões de metadados com foco na interoperabilidade. Rev Eletron Comun Inf Inov Saúde. https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/1469. Accessed 03 Mar 2023
Kritski, A. et al.: The role of the Brazilian Tuberculosis Research Network in national and international efforts to eliminate tuberculosis. Jornal Brasileiro Pneumologia 44, 77–81. https://doi.org/10.1590/s1806-37562017000000435
Bernardi, F., et al.: Blockchain based network for tuberculosis: a data sharing initiative in Brazil. Stud. Health Technol. Inform. 262, 264–267 (2019). https://doi.org/10.3233/SHTI190069
Sharma, A., Ndisha, M., Ngari, F., et al.: A review of data quality of an electronic tuberculosis surveillance system for case-based reporting in Kenya. Eur. J. Publ. Health 25, 1095–1097 (2015). https://doi.org/10.1093/eurpub/ckv092
Malmasi, S., Hosomura, N., Chang, L.-S., et al.: Extracting healthcare quality information from unstructured data. AMIA Annu. Symp. Proc. 2017, 1243–1252 (2017)
Acknowledgments
The study was partially supported by the Brazilian National Council for Scientific and Technological Development (CNPq) - grant numbers 440758/2018-1, 22411-2019, coordinated by author A.K., and by the São Paulo Research Foundation (FAPESP) - grant number 2020/ 01975-9, coordinated by author D.A.
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Cassão, V. et al. (2023). A Web Portal for Real-Time Data Quality Analysis on the Brazilian Tuberculosis Research Network: A Case Study. In: Mikyška, J., de Mulatier, C., Paszynski, M., Krzhizhanovskaya, V.V., Dongarra, J.J., Sloot, P.M. (eds) Computational Science – ICCS 2023. ICCS 2023. Lecture Notes in Computer Science, vol 10475. Springer, Cham. https://doi.org/10.1007/978-3-031-36024-4_24
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