Abstract
More than 80% of all newly registered leprosy cases in the world are in India, Brazil, and Indonesia combined. According to projections, even if country-level eradication is achieved by 2020, leprosy is expected to remain a concern in high-endemic areas. According to current research, almost half of leprosy patients and their families experience social, physical, or a mix of social and economic challenges, as well as debilitation or destitution. In the broadest sense, disability, which is a symptom of this disease, occurs when people are denied equitable access to resources in their families and communities. The term “rehabilitation” is often suffixed when thinking of a remedial intervention in the context of leprosy since deformities are the most obvious sign of the disease. The physical component of rehabilitation should come first, with the ultimate goal of reversing the physical consequences of leprosy, while behavioral adjustments tailored to individual patients, their families, and their cultures should come second. The case study from India highlights that the affected person is actively spreading the word about leprosy and assuring people that it is curable provided they undergo care in a timely manner. Finally, self-help groups have been found to be effective in resolving the issues that leprosy patients confront. The members of the group are well versed on the difficulties that the patient is dealing with. They learn to love, admire, and encourage one another, which builds trust and self-esteem. People can share ideas and learn from one another at group gatherings.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Similar content being viewed by others
References
Family ostracised over leprosy stigma in Odisha, rescued. The new Indian express. 2020. https://www.newindianexpress.com/states/odisha/2020/dec/16/family-ostracised-over-leprosy-stigma-in-odisha-rescued-2236947.html. Accessed 14 April 2021.
WHO. Global leprosy (Hansen disease) update, 2019: time to step-up prevention initiatives. WklyEpidem Rec. 2019b;2020(95):417–40.
Srinivas G, Muthuvel T, Lal V, Vaikundanathan K, Schwienhorst-Stich EM, Kasang C. Risk of disability among adult leprosy cases and determinants of delay in diagnosis in five states of India: a case-control study. PLoSNegl Trop Dis. 2019;13:e0007495.
Singh R, Singh B, Mahato S. Community knowledge, attitude, and perceived stigma of leprosy amongst community members living in Dhanusha and Parsa districts of southern Central Nepal. PLoSNegl Trop Dis. 2019;13:e0007075.
Galhotra A, Panigrahi SK, Pal A. Leprosy—a raging persistent enigma. J Family Med Prim Care. 2019;8:1863–6.
Katoch K, Aggarwal A, Yadav VS, Pandey A. National sample survey to assess the new case disease burden of leprosy in India. Indian J Med Res. 2017;146:585–605.
H. Srinivasan. The problem and challenge of disability and rehabilitation in leprosy. Asia Pac Disabil Rehabil J. 1998;9(1).
Thappa DM, Kaur SM, Sharma VK. Disability index of hands and feet in patients attending an urban leprosy clinic. Indian J Lepr. 1990;62:328–37.
Rao PN, Suneetha S. Current situation of leprosy in India and its future implications. Indian Dermatol Online J. 2018;9(2):83–9. https://doi.org/10.4103/idoj.IDOJ_282_17.
Tiwari A, Blok DJ, Arif M, Richardus JH. Leprosy post-exposure prophylaxis in the Indian health system: a cost-effectiveness analysis. PLoSNegl Trop Dis. 2020;14(8):e0008521. https://doi.org/10.1371/journal.pntd.0008521.
Correia JC, Golay A, Lachat S, Singh SB, Manandhar V, Jha N, et al. “If you will counsel properly with love, they will listen”: a qualitative analysis of leprosy affected patients’ educational needs and caregiver perceptions in Nepal. PLoS One. 2019;14:e0210955.
Sardana K, Bhushan P, Khurana A. Chemotherapy. In: Sardana K, Khurana A, editors. Joplings handbook of leprosy. 6th ed. New Delhi: CBS Publishers; 2020.
Smith CS, Aerts A, Kita E, Virmond M. Time to define leprosy elimination as zero leprosy transmission? Lancet Infect Dis. 2016;16:398–9.
WHO. Global leprosy strategy 2016–2020. Accelerating towards a leprosy-free world. Geneva: World Health Organization; 2016a.
Global Partnership for Zero Leprosy. GPZL reports on research priorities. Lepr Rev. 2019;90:237–89.
Scollard D, Gillis T. International textbook of leprosy. 2020. https://internationaltextbookofleprosy.org/. Accessed 2 April 2021.
Khazai Z, Van Brakel W, Essink D, Gillis T, Kasang C, Kuipers P, et al. Reviewing research priorities of the leprosy research initiative (LRI): a stakeholder’s consultation. Lepr Rev. 2019;90:3–30.
Alami H, Gagnon MP, Fortin JP. Digital health and the challenge of health systems transformation. Mhealth. 2017;3:31.
Simpson H, Quao B, van der Grinten E, Saunderson P, Ampadu E, Kwakye-Maclean C, et al. Routine surveillance data as a resource for planning integration of NTD case management. Lepr Rev. 2018;89:178–96.
Yotsu RR. Integrated management of skin NTDs—lessons learned from existing practice and field research. Trop Med Infect Dis. 2018;3:120.
Galhotra A., Mishra A. Neglected tropical diseases: a biosocial perspective. In: Singh P. (eds) Infectious diseases and your health 2018. Springer, Dermatol Sin https://doi.org/10.1007/978-981-13-1577-0_9.
Nurturing sustainable livelihoods. Sasakawa India Leprosy foundation. 2021. https://silf.in/nurturing-sustainable-livelihoods/. Accessed 11 March 2021.
WHO. WHO/ILEP technical guide on community-based rehabilitation and leprosy. World Health Organization. 2007.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2022 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this chapter
Cite this chapter
Agarwal, N., Mishra, A. (2022). Community Rehabilitation in Leprosy. In: Pradhan, S., Kumar, P. (eds) Clinical Cases in Leprosy. Clinical Cases in Dermatology. Springer, Cham. https://doi.org/10.1007/978-3-031-08220-7_9
Download citation
DOI: https://doi.org/10.1007/978-3-031-08220-7_9
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-031-08219-1
Online ISBN: 978-3-031-08220-7
eBook Packages: MedicineMedicine (R0)