Abstract
All care recipients have an essential right to be treated as individuals. From a moral imperative to the regulations governing the operations of long-term care facilities, there are specific provisions related to resident dignity, autonomy and choice, respect, privacy (when and to the extent possible), and individualization of the care and services provided, each of which will be covered in turn. As part of resident autonomy, this chapter covers resident councils, as well as the many ways in which facility staff and leadership can and must engage with residents to support them in directing their own care, thereby maximizing resident quality of life. Additionally, research exploring residents’ sense of purpose and how long-term care facilities can enhance residents’ feelings of self-worth and usefulness in congregate living settings is examined. Methods to promote a sense of purpose will be addressed, which helps residents experience meaning and improves overall satisfaction and quality of life in long-term care.
I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel. – Maya Angelou
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Anderberg, P. L. M. (2007). Preserving dignity in caring for older adults: A concept analysis. Journal of Advanced Nursing, 59, 635–643.
Bagnasco, A., Zanini, M., Dasso, N., Rossi, S., Timmins, F., Galanti, C., … Sasso, L. (2020). Dignity, privacy, respect and choice—A sco** review of measurement of these concepts within acute healthcare practice. Journal of Clinical Nursing, 29, 1832–1857. https://doi.org/10.1111/jocn.15245
Bangerter, L. R. (2017). Honoring the everyday preferences of nursing home residents: Perceived choice and satisfaction with care. The Gerontologist, 57(3), 479–486. https://doi.org/10.1093/geront/gnv697
Barbera, E. F. (2016, October 11). 3 surprising reasons to strengthen your resident council. McKnight’s Long-Term Living News. https://www.mcknights.com/blogs/the-world-according-to-dr-el/3-surprising-reasons-to-strengthen-your-resident-council/
Boyle, G. (2004). Facilitating choice and control for older people in long-term care. Health and Social Care in the Community, 12(3), 212–220.
Burack, O. W. A. (2012). What matters most to nursing home elders: Quality of life in the nursing home. Journal of the American Medical Directors Association, 13(1), 48–53.
Carter, L., & Van Puymbroeck, M. (2010). The importance of autonomy in nursing home facilities. American Journal of Recreation Therapy, 9, 41–45. https://doi.org/10.5055/ajrt.2010.0013
Cherry, K. (2021, March 15). Self-determination theory and motivation. Verywell Mind. https://www.verywellmind.com/what-is-self-determination-theory-2795387.
Chochinov, H., Hack, T., Hassard, T., Kristjanson, L., McClement, S., & Harlos, M. (2002). Dignity in the terminally ill: A cross-sectional, cohort study. Lancet, 360(9350), 2026–2030.
Degenholtz, H. B. (2014). Mproving quality of life in nursing homes: The structured resident interview approach. Journal of Aging Research, 2014, 892679. https://doi.org/10.1155/2014/892679
Dragaset, J., Haugan, G., & Tranvag, O. (2017). Crucial aspects promoting meaning and purpose in life: Perceptions of nursing hone residents. BMC Geriatrics, 17(254), 1–9. https://doi.org/10.1186/s12877-017-0650-x
Frankl, V. (1963). Man's search for meaning. Washington Square Press.
Hansen, K. E., Johs-Artisensi, J. L., Olson, D., Berg, N., & Parker, K. (2018). Qualitative and quantitative analysis of quality of life survey results research report. Center for Health Administration and Aging Services Excellence.
Hertz, J. (1996). Conceptualization of perceived enactment of autonomy in the elderly. Issues in Mental Health Nursing, 17(3), 261–273. https://doi.org/10.3109/01612849609049919
Humes, S., Abbott, K., & Van Haitsma, K. (2020, October 2). Integrating preferences into care plans. Preference Based Living. https://www.preferencebasedliving.com/tip-sheets/integrating-preferences-into-care-plans/.
James, T. A. (2018, August 31). Setting the stage: Why health care needs a culture of respect. Harvard Medical School. https://postgraduateeducation.hms.harvard.edu/trends-medicine/setting-stage-why-health-care-needs-culture-respect.
Johs-Artisensi, J., Hansen, K., & Olson, D. (2020). Qualitative analyses of nursing home residents’ quality of life from multiple stakeholders’ perspectives. Quality of Life Research, 29(5), 1229–1238. https://doi.org/10.1007/s11136-019-02395-3
Johs-Artisensi, J., Hansen, K., Olson, D., & Creapeau, L. (2021). Leadership perceptions and practices of hospitality in senior care. Journal of Applied Gerontology, 40(6), 598–597. https://doi.org/10.1177/0733464820923903
Kane, R., Caplan, A., Urv-Wong, E., Freeman, C., Aroskar, M., & Finch, M. (1997). Everyday matters in the lives of nursing home residents: Wish for and perception of choice and control. Journal of the American Geriatrics Society, 45(9), 1086–1093.
Kane, J., & de Vries, K. (2017). Dignity in long-term care: An application of Nordenfelt's work. Nursing Ethics, 24(6), 744–751. https://doi.org/10.1177/0969733015624487
Kisvetrova, H. (2019). Dignity in old age. Profese Online, 12(2), 10–11. https://doi.org/10.5507/pol.2019.006
Koskenniemi, J., Leino-Kilpi, H., Puukka, P., & Suhonen, R. (2019). Respect and its associated factors as perceived by older patients. Journal of Clinical Nursing, 28, 3848–3857. https://doi.org/10.1111/jocn.15013
Koskenniemi, J., Leino-Kilpi, H., & Suhonen, R. (2015). Manifestation of respect in the care of older patients in long-term care settings. Scandinavian Journal of Caring Sciences, 29, 288–296. https://doi.org/10.1111/scs.12162
Lan, S. H. (2017). Educational intervention on physical restraint use in long-term care facilities—Systematic review and meta-analysis. The Kaohsiung Journal of Medical Sciences, 33(8), 411–421. https://doi.org/10.1016/j.kjms.2017.05.012
Liu, L., Kao, C., & Ying, J. (2020). Functional capacity and life satisfaction in older adult residents living in long-term care facilities: The mediator of autonomy. The Journal of Nursing Research, 28(4), 1–7.
Mann, J. (1998). The UDHR’s revolutionary first article. Health and Human Rights, 3(2), 30–38.
McCabe, M., Byers, J., Lucy Busija, L., Mellor, D., Bennett, M., & Beattie, E. (2021). How important are choice, autonomy, and relationships in predicting the quality of life of nursing home residents? Journal of Applied Gerontology, 40(12), 1743–1750. https://doi.org/10.1177/0733464820983972
Nordenfelt, L., & Edgar, A. (2005). The four notions of dignity. Quality in Ageing and Older Adults, 6(1), 17–21. https://doi.org/10.1108/14717794200500004
Novotney, A. (2018, September 5). Voice assistants finding niche with elders. McKnight’s Long-Term Care News. https://www.mcknights.com/news/voice-assistants-finding-niche-with-elders/.
O’Rourke, H. M. (2015). Factors that affect quality of life from the perspective of people with dementia: A metasynthesis. Journal of the American Geriatrics Society, 63(1), 24–38. https://doi.org/10.1111/jgs.13178
O’Sullivan, G., & Hocking, C. (2006). Positive ageing in residential care. New Zealand Journal of Occupational Therapy, 53, 17–23.
Oosterveld-Vlug, M., Pasman, H., van Gennip, I., Muller, M., Willems, D., & Onwuteaka-Philipsen, B. (2014). Dignity and the factors that influence it according to nursing home residents: A qualitative interview study. Journal of Advanced Nursing, 70, 97–106. https://doi.org/10.1111/jan.12171
Reader, T. W. (2014). Patient complaints in healthcare systems: A systematic review and coding taxonomy. BMJ Quality and Safety, 23, 678–689. https://doi.org/10.1136/bmjqs.2013-002437
Reinardy, J. (1995). Relocation to a new environment: Decisional control and the move to a nursing home. Health and Social Work, 20(1), 31–38.
Slettebø, Å., Sæteren, B., Caspari, S., Lohne, V., Rehnsfeldt, A., Heggestad, A., … Nåden, D. (2017). The significance of meaningful and enjoyable activities for nursing home resident's experiences of dignity. Scandinavian Journal of Caring Sciences, 31, 718–726. https://doi.org/10.1111/scs.12386
Staats, K., Grov, E., Husebo, B., & Tranvag, O. (2020). Dignity and loss of dignity: Experiences of older women living with incurable cancer at home. Health Care for Women International, 41(9), 1036–1058. https://doi-org.proxy.uwec.edu/10.1080/07399332.2020.1797035
Surico, D. (2014, March 1). “Dining upgrades a la ‘cart’” McKnight’s Long-Term Care News. https://www.mcknights.com/news/dining-upgrades-a-la-cart/
Tuominen, L., Leino-Kilpi, H., & Suhonen, R. (2016). Older people's experiences of their free will in nursing homes. Nursing Ethics, 23(1), 22–35. https://doi.org/10.1177/0969733014557119
Van Haitsma, K. (2019). PELI-nursing home-MDS 3.0 section F-version 2.0. Preference based Living. https://www.preferencebasedliving.com/for-practitioners/practitioner/assessment/peli-questionnaires/peli-nursing-home-mds-3-0-section-f-version-2-0/
Welford, C. M. (2012). Autonomy for older people in residential care: A selective lit-erature review. International Journal of Older People Nursing, 7(1), 65–69. https://doi.org/10.1111/j.1748-3743.2012.00311.x
Wood, D. (2016, August 24). 10 Ways to ensure respectful care of ICU patients. American Mobile. https://www.americanmobile.com/nursezone/nursing-news/10-ways-to-ensure-respectful-care-of-icu-patients/
World Health Organization. (2011). Palliative care for older people: Better practices. World Health Organization. Retrieved from https://www.euro.who.int/__data/assets/pdf_file/0017/143153/e95052.pdf
World Health Organization. (2015). World report on ageing and health. World Health Organization. Retrieved from http://apps.who.int/iris/bitstream/handle/10665/186463/9789240694811_eng.pdf?sequence=1
Author information
Authors and Affiliations
Rights and permissions
Copyright information
© 2022 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this chapter
Cite this chapter
Johs-Artisensi, J.L., Hansen, K.E. (2022). Resident Autonomy, Dignity, and Respect. In: Quality of Life and Well-Being for Residents in Long-Term Care Communities. Human Well-Being Research and Policy Making. Springer, Cham. https://doi.org/10.1007/978-3-031-04695-7_2
Download citation
DOI: https://doi.org/10.1007/978-3-031-04695-7_2
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-031-04694-0
Online ISBN: 978-3-031-04695-7
eBook Packages: Social SciencesSocial Sciences (R0)