Abstract
The number of children eligible for Paediatric Palliative Care has dramatically increased over the years, with few tools that can help with early identification. The Paediatric Palliative Screening Scale is a dedicated German, English, and Portuguese screening tool. We aimed to translate and perform a cultural adaptation to the Italian setting of the Paediatric Palliative Screening Scale. This paper was a descriptive observational cross-sectional study. We carried it out in two consecutive steps: (1) translation and back translation and (2) cultural adaptation through a Delphi process. Twenty Paediatric Palliative Care national experts were invited to judge the content and structure of the translated scale and to assess the appropriateness and clarity of each question. Consensus was defined as 70% or more of experts agreeing with each item’s appropriateness and clarity. The Italian version of the Paediatric Palliative Screening Scale was obtained after two rounds of Delphi. After the second round of consultation, a substantial increase in experts’ consensus was found, especially for questions 1.1, 3.2 and 3.3 (from 56.3 to 93.8%), and reaching more than 83% for all the revised items.
Conclusions: The Paediatric Palliative Screening Scale is a reliable tool that can assist in timely evaluating children who qualify for Paediatric Palliative Care. The tool can be used in Italian healthcare settings with its cultural adaptation.
What is Known: |
|---|
• Despite the lack of early diagnosis techniques, there is a significant increase in the number of children entitled to Paediatric Palliative Care. |
• A specific screening tool called the Paediatric Palliative Screening Scale determines a child's suitability for paediatric palliative treatment. |
What is New: |
• The Paediatric Palliative Screening Scale is necessary to assess the psychosocial needs of patients eligible for Paediatric Palliative Care. The Italian scale has good content and face validity ensuring equivalence between the original and target populations. |
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No datasets were generated or analysed during the current study.
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Acknowledgements
We gratefully acknowledge Prof. Eva Bergstraesser for the possibility to translate the PaPaS Scale and all health workers and experts who have answered the invitation to contribute to the translation and Delphi process (Battaglia Anna, Battisti Laura, Benini Franca, Bordugo Andrea, Burlo Francesca, Casagranda Sara, Capasso Roberto, De Angelis Marta, Giannini Alberto, Gortani Giulia, Jankovic Momcilo, Kullman Gaia, Meriggi Sara, Molinaro Grazia, Novello Laura, Podda Marta, Uez Francesca, Zucchetti Giulia). The authors thank Martina Bradaschia for the English revision of the manuscript.
Funding
This work was supported by the Ministry of Health, Rome, Italy, in collaboration with the Institute for Maternal and Child Health IRCCS Burlo Garofolo, Trieste, Italy.
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LDZ, IC, and FeP designed and directed the project. FP, MG, BR, and AR developed the project. GZ and EPV helped supervise the project and analysed data from Delphi process. MG and GZ designed the figures. FP and MG wrote the article with support from LDZ, IC, GZ, EPV, and FeP. All authors discussed the results and contributed to the final manuscript.
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This study was performed in line with the principles of the Declaration of Helsinki. Approval was granted by the Ethics Committee IRCCS Burlo Garofolo Italy (IRB-BURLO protocol number: 0002381 14th November 2023).
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De Zen, L., Peri, F., Catalano, I. et al. Translation and cultural adaptation of the Italian version of the Paediatric Palliative Screening Scale. Eur J Pediatr (2024). https://doi.org/10.1007/s00431-024-05649-6
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DOI: https://doi.org/10.1007/s00431-024-05649-6