Parents’ Voices: Inclusion of Students with Intellectual and Developmental Disabilities in Higher Education

  • Conference paper
  • First Online:
Polyphonic Construction of Smart Learning Ecosystems (SLERD 2022)

Abstract

Making Higher Education more inclusive for students with Intellectual and Developmental Disabilities can bring significant benefits for the students themselves and for the academic community, in general. Family involvement is essential for the successful transition to post-scholar life, namely Higher Education. This paper presents and discusses the research and results of a study conducted with four Focus Group interviews involving 22 Portuguese parents of students with Intellectual and Developmental Disabilities. The main goal was to understand the perspectives and expectations of parents about the inclusion of their children in Higher Education. This study was carried out within the HiLives project scope, which includes, among its goals, to create strategies and provisions to facilitate and promote the inclusion of students with Intellectual and Developmental Disabilities in Higher Education, and the transition to an active and independent life. The results showed the prevalence of parents’ positive perceptions about the possibility of their sons/daughters attending Higher Education and allowed them to identify their preferred teaching models and methods, needs for support, barriers and incentives in this transition. This paper brings up some final recommendations for improving the processes of transition to Higher Education Institutions and their organization to be able of including students with Intellectual and Developmental Disabilities.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Subscribe and save

Springer+ Basic
EUR 32.99 /Month
  • Get 10 units per month
  • Download Article/Chapter or Ebook
  • 1 Unit = 1 Article or 1 Chapter
  • Cancel anytime
Subscribe now

Buy Now

Chapter
EUR 29.95
Price includes VAT (Germany)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
EUR 160.49
Price includes VAT (Germany)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
EUR 213.99
Price includes VAT (Germany)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free ship** worldwide - see info
Hardcover Book
EUR 213.99
Price includes VAT (Germany)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free ship** worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Similar content being viewed by others

References

  1. Patrick, L., Edwards, C.: Youth Quality of Life Instrument – Short Form: Intervention in School and Clinic. University of Washington, Seattle, Washington (2010)

    Google Scholar 

  2. Wagner, M., Newman, L., Cameto, R., Garza, N., Levine, P.: After High School: A First Look at the Postschool Experiences of Youth with Disabilities. Menlo Park, CA: SRI International (2005)

    Google Scholar 

  3. OECD.: Inclusion of Students with Disabilities in Tertiary Education and Employment: Training Policy. OECD Publishing (2011)

    Google Scholar 

  4. Garrison-Wade, F.: Listening to their voices: factors that inhibit or enhance postsecondary outcomes for students with disabilities. Int. J. Special Educat. 27(2), 1–15 (2012)

    Google Scholar 

  5. GTAEDES: Alunos com deficiência no ES. (2019). http://www.gtaedes.pt. Last accessed 22 Mar 2022

  6. Schalock, R.L., Luckasson, R.A., Shogren, K.: The renaming of mental retardation: understanding the change to the term intellectual disability. Intellect. Dev. Disabil. 45(2), 116–124 (2007)

    Article  Google Scholar 

  7. Fânzeres, L.: Transição para a vida adulta de alunos com necessidades educativas especiais: Percursos de formação no sistema educativo português. PhD diss., University of Minho (2017). http://hdl.handle.net/1822/50880. Last accessed 21 Mar 2022

  8. Ferreira, M.: Perspetivas sobre a transição para a vida pós-escolar de alunos com dificuldade intellectual. PhD diss., University of Minho (2019). http://hdl.handle.net/1822/60249

  9. Veiga, C., Domingues, I., Saragoça, J., Fernandes, L.: Inclusão profissional e qualidade de vida. Vila Nova de Famalicão: Formem (2014)

    Google Scholar 

  10. Martins, I.C., Albuquerque, E., Pereira, M.: Enhancing participation, creating good memories: an experience of inclusion in community. Dev. Med. Child Neurol. 62(S4), 34–52 (2020)

    Google Scholar 

  11. Skinner, M., Lindstrom, B.: Bridging the gap between high school and college: strategies for the successful transition of students with learning disabilities. Preventing school failure: alternative education for children and youth 47(3), 132–137 (2003)

    Article  Google Scholar 

  12. Doren, B., Gau, J., Lindstrom, E.: The relationship between parent expectations and postschool outcomes of adolescents with disabilities. Except. Child. 79(1), 7–23 (2012)

    Article  Google Scholar 

  13. Dunst, J., Leet, E., Trivette, M.: Family resources, personal wellbeing, and early intervention. J. Special Educat. 22(1): 108–116 (1988)

    Google Scholar 

  14. Dunst, J.: Early intervention in the USA: programs, models, and practices. Prevention and intervention in childhood and adolescence 11–52 (1996)

    Google Scholar 

  15. Santos P., Tymoshchuk O., Sousa T., Almeida M.: Compartilha: a sharing social network in Special NEEDs aiming to empower parents and experts. INTED2015 Proceedings. In: 9th International Technology, Education and Development Conference. Madrid, Spain. 2–4 March (2015). http://library.iated.org/

  16. Caldwell, K., Parker Harris, S., Renko, M.: Inclusive management for social entrepreneurs with intellectual disabilities: “how they act. J. Appl. Res. Intellect. Disabil. 33(2), 204–218 (2020)

    Article  Google Scholar 

  17. Clark, H.: Involvement of the young person in transition planning. In Incarcerated Youth Transitioning Back to the Community, 35–58. Springer, Singapore (2018).

    Google Scholar 

  18. Pearpoint, J., Forest, M., J. O’Brien.: PATH: A Workbook for Planning Positive Possible Futures: Planning Alternative Tomorrows with Hope for Schools, Organizations, Businesses, Families. Inclusion Press (1993)

    Google Scholar 

  19. Wood, H., O’Farrell, K., Bjerk-Andersen, C., Mullen, C., Kovshoff, H.: The impact of planning alternative tomorrows with Hope (PATH) for children and young people. Educ. Psychol. Pract. 35(3), 326–338 (2019)

    Article  Google Scholar 

  20. Bernie-Smith, M., Patton, J., Kim, S.: Mental Retardation (7th ed.). Upper Saddle River, NJ: Pearson Education (2006)

    Google Scholar 

  21. McGee, J., Menolascino, J., Hobbs, C., Menousek, P.: Gentle Teaching: A Non-aversive Approach to Hel** Persons with Mental Retardation. Human Sciences Press, New York (1987)

    Google Scholar 

  22. Van de Siepkamp, P.: An introduction to GT. Learn. Disabil. Pract. 13(6), 25–27 (2010). https://doi.org/10.7748/ldp2010.07.13.6.25.c7888

    Article  Google Scholar 

  23. Cullen, C., Mudford, O.C.: GT Controversial therapies for developmental disabilities: fad, fashion, and science in professional practice, 423–432 (2005)

    Google Scholar 

  24. Martins, C., Marques, R., Linharelhos, M., Martins, I.C.: Sentir-se seguro e amado na escola: Gentle Teaching em contexto educativo. Gestão e Desenvolvimento, 29–50 (2021)

    Google Scholar 

  25. Pereira, M.: Pertencer & Participar para Aprender. Edição ASSOL (2017)

    Google Scholar 

  26. Martins, I.C., Ribeiro, C., Ferreira, A.: Quality of life in cerebral palsy: the importance of social support. Aten. Primaria 48, 133–155 (2016)

    Google Scholar 

  27. Canha, L. Fernandes, C.: Sintra Inclui - Projeto E Manual. Camara Municipal de Sintra (2018)

    Google Scholar 

  28. Lui, J.H., Marcus, D.K., Barry, C.T.: Evidence-based apps? A review of mental health mobile applications in a psychotherapy context. Prof. Psychol. Res. Pract. 48(3), 199 (2017)

    Article  Google Scholar 

  29. Bryman, A.: Social Research Methods, 4th edn. Oxford University Press, Oxford, New York (2012)

    Google Scholar 

  30. Morgan, L.: Planning Focus Groups. Sage, Thousand Oaks, CA (1998)

    Book  Google Scholar 

  31. Creswell, J., Clark, V.: Designing and Conducting Mixed Methods Research, 2nd edn. SAGE Publications, Inc., Los Angeles (2010)

    Google Scholar 

  32. O’Brien, P., Bonati, L., Gadow, F., Slee, R.: People with intellectual disability experience university life: theoretical underpinnings, evidence and lived experience. Brill (2019)

    Google Scholar 

  33. Pearpoint, J., Forest, M., O’Brien. J.: Path: A Workbook for Planning Positive Possible Futures: Planning Alternative Tomorrows with Hope for schools, Organizations, Businesses, Families. Inclusion Press (1993)

    Google Scholar 

  34. Machado, M., Santos, P., Espe-Sherwindt. M.: Inclusão de pessoas com dificuldades intelectuais e desenvolvimentais no ensino superior: contributos da literatura no contexto europeu. Revista Portuguesa de Investigação Educacional 20, 143–165 (2020)

    Google Scholar 

  35. Traina, I., Hoogerwerf, E.: Possible framework for the design of learning programs in assistive technology for people with intellectual disabilities in inclusive educational environments. Psychol. Behav. Sci. 7(2), 29–37 (2018)

    Article  Google Scholar 

  36. Lombard, P.: Factors that influence transition from high school to higher education: a case of the Junior Tukkie programme. Afr. J. Career Develop. 2(1), 1–14 (2020)

    Article  Google Scholar 

  37. Woodward, J., Rieth, H.: A historical review of technology research in special education. Rev. Educ. Res. 67, 503–536 (1997)

    Article  Google Scholar 

  38. Rose, D., Meyer, A.: Teaching Every Student in the Digital Age: Universal Design for Learning. Alexandria, VA: ASCD (2002)

    Google Scholar 

  39. Coyne, P., Pisha, B., Dalton, B., Zeph, L., Smith, N.: Literacy by design: a universal design for learning approach for students with significant intellectual disabilities. Remedia Special Educat. 33(3), 162–172 (2012)

    Article  Google Scholar 

  40. Ainscow, M.: Tornar a educação inclusiva: como esta tarefa deve ser conceituada. Tornar a educação inclusiva 1, 11–24 (2009)

    Google Scholar 

  41. Corby, D., Cousins, W., Slevin, E.: Inclusion of adults with intellectual disabilities in post-secondary and higher education: a review of the literature. Lifelong Learn. Commun. Develop. 7, 69–86 (2012)

    Google Scholar 

  42. Mara, D.: Higher education for people with disabilities–Romanian education experience. Procedia Soc. Behav. Sci. 142, 78–82 (2014)

    Article  Google Scholar 

  43. Weinkauf, T.: College and university? You’ve got to be kidding: Inclusive postsecondary education for adults with intellectual disabilities. Crossing Boundaries 1(2), 28–36 (2002)

    Google Scholar 

  44. Blumberg, R., Carroll, S., Petroff, J.: Career and community studies: an inclusive liberal arts programme for youth with intellectual disabilities. Int. J. Incl. Educ. 12(5), 621–637 (2008)

    Article  Google Scholar 

Download references

Acknowledgements

This work is financially supported by national funds through FCT—Foundation for Science and Technology, I.P., under the project UIDB/05460/2020.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Oksana Tymoshchuk .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2023 The Author(s), under exclusive license to Springer Nature Singapore Pte Ltd.

About this paper

Check for updates. Verify currency and authenticity via CrossMark

Cite this paper

Martins, I.C., Tymoshchuk, O., Albuquerque, E., Santos, P., Van Hove, G. (2023). Parents’ Voices: Inclusion of Students with Intellectual and Developmental Disabilities in Higher Education. In: Dascalu, M., Marti, P., Pozzi, F. (eds) Polyphonic Construction of Smart Learning Ecosystems. SLERD 2022. Smart Innovation, Systems and Technologies, vol 908. Springer, Singapore. https://doi.org/10.1007/978-981-19-5240-1_11

Download citation

Publish with us

Policies and ethics

Navigation