Transition to the Adult Care Paradigm

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Solid Organ Transplantation in Infants and Children

Part of the book series: Organ and Tissue Transplantation ((OTT))

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Abstract

The move from pediatric to adult health care is known to be a high-risk period for transplant recipients. Advance preparation to promote self-management, treatment adherence, and connection to adult care is essential.

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References

  • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians (2011) Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 128:182–200

    Article  Google Scholar 

  • Annunziato RA, Emre S, Shneider BL (2008) Transitioning health care responsibility from caregivers to patient: a pilot study aiming to facilitate medication adherence during this process. Pediatr Transplant 12:309–315

    Article  PubMed  Google Scholar 

  • Annunziato RA, Arrato N, Rubes M et al (2015) The importance of mental health monitoring during transfer to adult care settings as examined among paediatric transplant recipients. J Paediatr Child Health 51:220–222

    Article  PubMed  Google Scholar 

  • Anthony SJ, Kaufman M, Drabble A et al (2009) Perceptions of transitional care needs and experiences in pediatric heart transplant recipients. Am J Transplant 9:614–619

    Article  CAS  PubMed  Google Scholar 

  • Ashoor IF, Dharnidharka VR (2015) Sexually transmitted infection screening and reproductive health counseling in adolescent renal transplant recipients: a study from the Midwest pediatric nephrology consortium. Pediatr Transplant 19:704–708

    Article  PubMed  Google Scholar 

  • Aujoulat I, Janssen M, Libion F et al (2014) Internalizing motivation to self-care: a multifaceted challenge for young liver transplant recipients. Qual Health Res 24:357–365

    Article  PubMed  Google Scholar 

  • Bell LE, Bartosh SM, Davis CL et al (2008) Adolescent transition to adult care in solid organ transplantation: a consensus conference report. Am J Transplant 8:2230–2242

    Article  CAS  PubMed  Google Scholar 

  • Campbell F, Biggs K, Aldiss SK et al (2016) Transition of care for adolescents from paediatric services to adult health services. Cochrane Database Syst Rev. https://doi.org/10.1002/14651858

  • Colver A, Longwell S (2013) New understanding of adolescent brain development: relevance to transitional healthcare for young people with long term conditions. Arch Dis Child 98:902–907

    Article  PubMed  PubMed Central  Google Scholar 

  • Davis AM, Brown RF, Taylor JL et al (2014) Transition care for children with special health care needs. Pediatrics 124:900–908

    Article  Google Scholar 

  • Fair C, Cuttance J, Sharma N et al (2016) International and interdisciplinary identification of health care transition outcomes. JAMA Pediatr 170:205–211

    Article  PubMed  Google Scholar 

  • Foster B (2015) Heightened graft failure risk during emerging adulthood and transition to adult care. Pediatr Nephrol 30:567–576

    Article  PubMed  Google Scholar 

  • Fredericks EM, Zelikovsky N, Aujoulat I et al (2014) Post-transplant adjustment – the later years. Pediatr Transplant 18:675–688

    Article  PubMed  PubMed Central  Google Scholar 

  • Gutierrez-Colina AM, Eaton CK, Lee JL et al (2016) Executive functioning, barriers to adherence, and nonadherence in adolescent and young adult transplant recipients. J Pediatr Psychol 41:759–767

    Article  PubMed  Google Scholar 

  • Harden PN, Walsh G, Bandler N et al (2012) Bridging the gap: an integrated paediatric to adult clinical service for young adults with kidney failure. BMJ 344:e3718

    Article  CAS  PubMed  Google Scholar 

  • Heldman MR et al (2015) National survey of adult transplant hepatologists on the pediatric-to-adult care transition after liver transplantation. Liver Transpl 21:213–223

    Article  PubMed  Google Scholar 

  • Jerson B, D’Urso C, Arnon R et al (2013) Adolescent transplant recipients as peer mentors: a program to improve self-management and health related quality of life. Pediatr Transplant 17:612–620

    PubMed  Google Scholar 

  • Kaufman M (2006) Role of adolescent development in the transition process. Prog Transplant 16:286–290

    Article  PubMed  Google Scholar 

  • Kaushansky D, Cox J, Dodson C et al (2016) Living a secret: disclosure among adolescents and young adults with chronic illnesses. Chronic Illn. https://doi.org/10.1177/1742395316655855

  • Kerkar N, Annunziato R (2015) Transitional care in solid organ transplantation. Semin Pediatr Surg 24:83–87

    Article  PubMed  Google Scholar 

  • Lee JL, Eaton C, Gutierrez-Colina AM et al (2014) Longitudinal stability of specific barriers to medication adherence. J Ped Psychol 39:667–676

    Article  Google Scholar 

  • Lochridge J, Wolff J, Oliva M et al (2013) Perceptions of solid organ transplant recipients regarding self-care management and transitioning. Pediatr Nurs 39:81–89

    PubMed  Google Scholar 

  • Maslow GR, Haydon A, McRee A et al (2011) Growing up with a chronic illness: social success, educational/vocational distress. J Adol Health 49:206–212

    Article  Google Scholar 

  • McCurdy C, DiCenso A, Boblin S et al (2006) There to here: young adult patients’ perceptions of the process of transition from pediatric to adult transplant care. Prog Transplant 16:309–316

    Article  PubMed  Google Scholar 

  • McDiarmid SV (2013) Adolescence: challenges and responses. Liver Transpl 19:S35–S39

    Article  PubMed  Google Scholar 

  • Meaux JB, Green A, Nelson MK et al (2014) Transition to self-management after pediatric heart transplant. Prog Transplant 24:226–233

    Article  PubMed  Google Scholar 

  • Pinquart M (2014) Achievement of developmental milestones in emerging and young adults with and without pediatric chronic illness – a meta-analysis. J Pediatr Psychol 39:577–587

    Article  PubMed  Google Scholar 

  • Prestidge C, Romann A, Djurdjev O et al (2012) Utility and cost of a renal transplant transition clinic. Pediatr Nephrol 27:295–302

    Article  PubMed  Google Scholar 

  • Reed-Knight B, Blount RL, Gilleland J (2014) The transition of health care responsibility from parents to youth diagnosed with chronic illness: a developmental systems perspective. Fam Syst Health 32:219–234

    Article  PubMed  Google Scholar 

  • Shemesh E, Annunziato RA, Arnon R et al (2010) Adherence to medical recommendations and transition to adult services in pediatric transplant recipients. Curr Opin Organ Transplant 15:288–292

    Article  PubMed  PubMed Central  Google Scholar 

  • Zhang LF, Ho JSW, Kennedy SE (2014) A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease. BMC Pediatr 14:4

    Article  PubMed  PubMed Central  Google Scholar 

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Correspondence to Amy Renwick .

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Renwick, A. (2017). Transition to the Adult Care Paradigm. In: Dunn, S., Horslen, S. (eds) Solid Organ Transplantation in Infants and Children. Organ and Tissue Transplantation. Springer, Cham. https://doi.org/10.1007/978-3-319-08049-9_54-1

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  • DOI: https://doi.org/10.1007/978-3-319-08049-9_54-1

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-08049-9

  • Online ISBN: 978-3-319-08049-9

  • eBook Packages: Springer Reference MedicineReference Module Medicine

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