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The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization
Throughout the Global North, policymakers invest in large-scale integration of health-data infrastructures to facilitate the reuse of clinical data...
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Secondary Use of Health Data for Medical AI: A Cross-Regional Examination of Taiwan and the EU
This paper conducts a comparative analysis of data governance mechanisms concerning the secondary use of health data in Taiwan and the European Union...
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Talking Ethics Early in Health Data Public Private Partnerships
Data access and data sharing are vital to advance medicine. A growing number of public private partnerships are set up to facilitate data access and...
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Artificial Intelligence Needs Data: Challenges Accessing Italian Databases to Train AI
Population biobanks are an increasingly important infrastructure to support research and will be a much-needed resource in the delivery of...
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Spirituality in Health Care
The discourse of spirituality in health care (SIHC) exhibits a number of features not always present in the academic literature. One founding...
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Towards Equitable Health Outcomes Using Group Data Rights
The use of Big Data and algorithmic decision-making in healthcare has been promoted over the last decade with the claim that using such methods...
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Beyond Public Health and Private Choice: Breastfeeding, Embodiment and Public Health Ethics
The key objective of this paper is to emphasize the importance of acknowledging breastfeeding as an embodied social practice within interventions...
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Map** the Apps: Ethical and Legal Issues with Crowdsourced Smartphone Data using mHealth Applications
More than 5 billion people in the world own a smartphone. More than half of these have been used to collect and process health-related data. As such,...
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Agriculture and environment: friends or foes? Conceptualising agri-environmental discourses under the European Union’s Common Agricultural Policy
The European Union’s common agricultural policy (CAP), in addition to its primary production and farm income goals, is a large source of funding for...
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The Normative Challenges of AI in Outer Space: Law, Ethics, and the Realignment of Terrestrial Standards
The paper examines the open problems that experts of space law shall increasingly address over the next few years, according to four different sets...
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Ethical AI: The European Approach to Achieving the SDGs Through AI
The European legislative framework for the development and regulation of artificial intelligence (AI) is beginning to take shape: the European...
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Leveraging Spirituality and Religion in European For-profit-organizations: a Systematic Review
This systematic review synthesises the available evidence regarding the European understanding of workplace spirituality (definitions), the...
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National Regulation on Processing Data for Scientific Research Purposes and Biobanking Activities: Reflections on the Experience in Austria
The application of the latest technologies in biology and medicine has brought them to a qualitatively new level of possibilities. Worldwide,...
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New Solutions to Biomedical Data Sharing : Secure Computation and Synthetic Data
An essential precondition for Artificial Intelligence applications in health is the possibility of having recourse to Big Data. The inconvenient...
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Farming futures: Perspectives of Irish agricultural stakeholders on data sharing and data governance
The current research examines the emergent literature of Critical Data Studies, and particularly aligns with Michael and Lupton’s (2016) manifesto...
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Social Inequality in Child Health and Development—Before and After the COVID-19 Pandemic
Vulnerable children, i.e., children growing up in families with low socioeconomic positions have a higher risk of poor health and developmental...
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Health Care Institutions
TheHealth care purposeInstitution of the present chapter is to consider how understanding health careHealth care as a rightRight affects the conduct...
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“Data makes the story come to life:” understanding the ethical and legal implications of Big Data research involving ethnic minority healthcare workers in the United Kingdom—a qualitative study
The aim of UK-REACH (“The United Kingdom Research study into Ethnicity And COVID-19 outcomes in Healthcare workers”) is to understand if, how, and...
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Safeguarding Users of Consumer Mental Health Apps in Research and Product Improvement Studies: an Interview Study
Mental health-related data generated by app users during the routine use of Consumer Mental Health Apps (CMHAs) are being increasingly leveraged for...