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Feeling scared or worried self-report in children receiving cancer treatments using the Symptom Screening in Pediatrics Tool (SSPedi)
IntroductionThe objectives of this study were to describe reports of bother for feeling scared or worried among children with cancer and pediatric...
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Reasons for disagreement between proxy-report and self-report rating of symptoms in children receiving cancer therapies
PurposeTo qualitatively describe reasons for disagreement in ratings of bothersome symptoms between child self-report and parent proxy-report.
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Chemo assist for children mobile health application to manage chemotherapy-related symptoms in acute leukemia in Indonesia: a user-centered design approach
BackgroundA mobile health (mHealth) application can encourage parents and pediatric patients to be involved in caring for their child’s health...
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Including Young Children in the Development and Testing of Patient Reported Outcome (PRO) Instruments: A Sco** Review of Children’s Involvement and Qualitative Methods
BackgroundQualitative research during the development/testing of Patient Reported Outcome Measures (PROMs) is recommended to support content...
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Optimising symptom management in children with cancer using a novel mobile phone application: protocol for a controlled hybrid effectiveness implementation trial (RESPONSE)
BackgroundIntense and aggressive treatment regimens for most children’s cancer have achieved vast improvements in survival but are also responsible...
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Feasibility of a randomized controlled trial of symptom screening and feedback to healthcare providers compared with standard of care using the SPARK platform
PurposeSupportive care Prioritization, Assessment and Recommendations for Kids (SPARK) is a web-based application that enables symptom screening and...
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The Symptom Experience in Pediatric Cancer: Current Conceptualizations and Future Directions
Purpose of ReviewWe aimed to review the recent research on the childhood cancer symptom experience pertaining to socioeconomic factors, biology and...
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Barriers to symptom management care pathway implementation in pediatric Cancer
BackgroundObjectives were to describe barriers to pediatric cancer symptom management care pathway implementation and the impact of the COVID-19...
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Development of a patient-reported outcome measure for the assessment of symptom burden in pediatric chronic kidney disease (PRO-Kid)
BackgroundChronic kidney disease (CKD) and kidney failure in childhood are associated with significant and life-altering morbidities and lower...
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Psychosocial assessment practices for hematopoietic stem cell transplantation: a national survey study
Psychosocial health predicts and contributes to medical outcomes for patients undergoing hematopoietic stem cell transplantation (HSCT). Yet, there...
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Changes in hunger among pediatric patients with cancer and hematopoietic stem cell transplantation recipients
PurposeChange in hunger is a common and bothersome symptom among pediatric patients receiving cancer treatments. Objectives were to describe how...
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Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality
IntroductionSelf-report is the gold standard for measuring children’s health-related outcomes. Design of such measures is complex and challenging....
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Role of smartphone devices in precision oncology
BackgroundTo improve the care for cancer patients, personalized treatment including monitoring and managing Quality of life (QoL) data collection of...
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Severely bothersome fatigue in children and adolescents with cancer and hematopoietic stem cell transplant recipients
BackgroundObjectives were to describe bothersome fatigue in children with cancer and hematopoietic stem cell (HSCT) recipients and to identify...
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Identifying clinical practice guidelines for symptom control in pediatric oncology
BackgroundChildren with cancer commonly experience distressing symptoms such as pain, fatigue and nausea. Improvements in patient outcomes have been...
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Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a sco** review
BackgroundMeasuring outcomes facilitates evaluation of palliative services for children, adolescents, and young adults (CAYAs) with life-limiting...
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Taste changes in children with cancer and hematopoietic stem cell transplant recipients
BackgroundObjectives were to describe bothersome self-reported changes in taste in pediatric oncology and hematopoietic stem cell (HSCT) patients and...
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Recruitment principles and strategies for supportive care research in pediatric oncology
BackgroundVariations in clinical practice contribute to negative outcomes for children with cancer. Research in this area is imperative to...
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Psychosocial risk, symptom burden, and concerns in families affected by childhood cancer
PurposeThe revised Psychosocial Assessment Tool (PATrev) is a common family-level risk-based screening tool for pediatric oncology that has gained...
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Changes in taste among pediatric patients with cancer and hematopoietic stem cell transplantation recipients
PurposeChanges in taste is a common bothersome symptom in children receiving cancer treatments. However, little is known about how pediatric cancer...
