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Examining interrater agreement between self-report and proxy-report responses for the quality of life-aged care consumers (QOL-ACC) instrument
BackgroundQuality of life is an important quality indicator for health and aged care sectors. However, self-reporting of quality of life is not...
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Validity and reliability of Arabic version of pediatric migraine disability assessment scale (Child Self-Report versus Parent Proxy-Report): a multi-center study
BackgroundPediatric Migraine Disability Assessment (PedMIDAS) is one of the most frequently used questionnaires to assess disability from migraine in...
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EQ-5D-Y-3L and EQ-5D-Y-5L proxy report: psychometric performance and agreement with self-report
BackgroundSelf-report is the standard for measuring people’s health-related quality of life (HRQoL), including children. However, in certain...
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Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions
PurposeMeasuring health-related quality of life (HRQoL) of children with suspected genetic conditions is important for understanding the effect of...
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Sleep problems and referral intentions in mental health services: service user self-report and staff proxy report surveys
BackgroundSleep problems are common in mental health service users, but few non-pharmacological therapies are offered. Therapies are being developed...
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Clearing the air: underestimation of youth smoking prevalence associated with proxy-reporting compared to youth self-report
BackgroundSmoking remains a leading cause of disease burden globally. Declining youth smoking prevalence is an essential feature of effective tobacco...
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Unravelling the Self-Report Versus Proxy-Report Conundrum for Older Aged Care Residents: Findings from a Mixed-Methods Study
ObjectivesNo guidance currently exists as to the cognition threshold beyond which self-reported quality of life for older people with cognitive...
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The use of proxies and proxy-reported measures: a report of the international society for quality of life research (ISOQOL) proxy task force
AimsProxy reports are often used when patients are unable to self-report. It is unclear how proxy measures are currently in use in adult health care...
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A systematic review of proxy-report questionnaires assessing physical activity, sedentary behavior and/or sleep in young children (aged 0–5 years)
BackgroundAccurate proxy-report questionnaires, adapted to the child’s developmental stage, are required to monitor 24-h movement behaviors in young...
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A systematic review of tools designed for teacher proxy-report of children’s physical literacy or constituting elements
BackgroundPhysical literacy (PL) in childhood is essential for a healthy active lifestyle, with teachers playing a critical role in guiding its...
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Munchausen syndrome by proxy: a case report
BackgroundInappropriately high levels of insulin secretion can cause the potentially fatal condition of persistent hyperinsulinemic hypoglycemia of...
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Reasons for disagreement between proxy-report and self-report rating of symptoms in children receiving cancer therapies
PurposeTo qualitatively describe reasons for disagreement in ratings of bothersome symptoms between child self-report and parent proxy-report.
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“Alcohol intoxication by proxy on a NICU” - a case report
BackgroundEthanol intoxications in newborns are generally due to false preparation of formula with alcoholics or alcohol consumption by the...
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Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study
PurposeTo examine agreement between pediatric burn survivor self- and caregiver proxy-report on multiple PROMIS domains and examine factors...
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The validity of proxy responses on patient-reported outcome measures: Are proxies a reliable alternative to stroke patients’ self-report?
PurposeCaregivers, or proxies, often complete patient-reported outcome measures (PROMs) on behalf of patients with stroke. The objective of our study...
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Understanding the influence of different proxy perspectives in explaining the difference between self-rated and proxy-rated quality of life in people living with dementia: a systematic literature review and meta-analysis
PurposeProxy assessment can be elicited via the proxy-patient perspective (i.e., asking proxies to assess the patient’s quality of life (QoL) as they...
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An Investigation of Inter-Rater and Intra-Proxy Agreement in Measuring Quality of Life of Children in the Community Using the EQ-5D-Y-3L
BackgroundSelf-reporting of health-related quality of life (HRQoL) in children is not always feasible. To date, proxy perspectives (Proxy versions 1...
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Development of consensus-based considerations for use of adult proxy reporting: an ISOQOL task force initiative
AimsMany large-scale population-based surveys, research studies, and clinical care allow for inclusion of proxy reporting as a strategy to collect...
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Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes
PurposeThere are many validated quality-of-life (QoL) measures designed for people living with dementia. However, the majority of these are completed...
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Feasibility, validity and reliability of the ASCOT-Proxy and ASCOT-Carer among unpaid carers of people living with dementia in England
BackgroundPeople with dementia living at home represent a growing group of social care services users in England. Many are unable to complete...
