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Patient and public involvement in Nordic healthcare research: a sco** review of contemporary practice
BackgroundOver the past decades, there has been a growing international interest in user involvement in healthcare research. However, evidence on the...
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Systematic review on the frequency and quality of reporting patient and public involvement in patient safety research
BackgroundIn recent years, patient and public involvement (PPI) in research has significantly increased; however, the reporting of PPI remains poor....
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Patient and public involvement in health research in Norway: a survey among researchers and patient organisations
BackgroundPatient and public involvement (PPI) in health research may improve both the relevance and quality of the research. There is however a lack...
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Incorporation of patient and public involvement in statistical methodology research: development of an animation
BackgroundPatient and Public Involvement and Engagement (PPIE) is important to all aspects of health research. However, there are few examples of...
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The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia research
BackgroundPatient and Public Involvement (PPI) in aphasia research requires researchers to include people with aphasia as research partners from the...
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Patient and public involvement in research: the need for budgeting PPI staff costs in funding applications
BackgroundPatient and Public Involvement (PPI) groups are becoming more established as collaborators with academic researchers and institutions to...
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Patient and public involvement in rheumatic and musculoskeletal research: an idea whose time has firmly come
Patient and public involvement is an idea whose time has firmly come. It is the views of these Guest Editors that it is the right thing to do morally...
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Patient and public involvement in research: a review of practical resources for young investigators
Patient and public involvement (PPI) in every aspect of research will add valuable insights from patients’ experiences, help to explore barriers and...
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Patient and public involvement in mobile health-based research for hay fever: a qualitative study of patient and public involvement implementation process
BackgroundSmartphones are being increasingly used for research owing to their multifunctionality and flexibility, and crowdsourced research using...
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Sharing space at the research table: exploring public and patient involvement in a methodology priority setting partnership
BackgroundPublic and patient involvement aims to improve research quality, relevance, and appropriateness. Despite an increasing evidence base on the...
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Develo** sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations
BackgroundRare diseases where prognosis is poor provide limited scope for patient and public involvement (PPI). One such disease is mesothelioma, a...
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A review of reviews exploring patient and public involvement in population health research and development of tools containing best practice guidance
IntroductionPatient and public involvement (PPI) is increasingly seen as something that is integral to research and of importance to research...
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Incorporation of patient and public involvement in statistical methodology research: a survey assessing current practices and attitudes of researchers
BackgroundPatient and public involvement (PPI) ensures that research is designed and conducted in a manner that is most beneficial to the individuals...
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Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research
BackgroundRecent studies mention a need to investigate partnership roles and dynamics within patient and public involvement and engagement (PPIE) in...
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Commentary: Advocating for patient and public involvement and engagement in health economic evaluation
BackgroundPatient and public involvement in health economic evaluation is still relatively rare, compared to other areas of health and social care...
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Patient and Public Involvement (PPI) and Responsible Research and Innovation (RRI) approaches in mental health projects involving young people: a sco** review protocol
BackgroundRather than being perceived as merely ‘part of the problem’, the perspectives and experiences of young people play a pivotal role in...
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A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research
BackgroundThere are marked inequalities in palliative care provision. Research is needed to understand how such inequalities can be addressed, so...
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Using the UK standards for public involvement to evaluate the public involvement sections of annual reports from NIHR managed research centres
BackgroundWithin the United Kingdom (UK), the National Institute for Health and Care Research is the largest funder of health and social care...
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Patient and public involvement in an international rheumatology translational research project: an evaluation
BackgroundRheuma Tolerance for Cure (RTCure) is a five-year international collaboration between academia, industry and patients/members of the...
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The impact of patient and public involvement on COVID-19 immunology research: experiences from the UK Coronavirus Immunology Consortium
BackgroundPatient and Public Involvement (PPI) in clinical trial research is recognised as relevant but the active involvement of patients and the...
