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Evaluation of a method to identify midwives in national provider identifier data
ObjectivesComparison of national midwife workforce data from the National Provider Identifier file determined it undercounted midwives compared to...
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The National Cancer Database Conforms to the Standardized Framework for Registry and Data Quality
BackgroundStandardization of procedures for data abstraction by cancer registries is fundamental for cancer surveillance, clinical and policy...
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Novel linkage approach to join community-acquired and national data
BackgroundCommunity optometrists in Scotland have performed regular free-at-point-of-care eye examinations for all, for over 15 years. Eye...
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The iceberg model of suicidal ideation and behaviour in Danish adolescents: integration of national registry and self-reported data within a national birth cohort
Hospital records are used to identify suicide attempts in many countries but not all individuals present to hospital after a suicide attempt i.e.,...
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National Data and the Applicability to Understanding Rural and Remote Substance Use
Responding to increases in overdose, addiction, and substance misuse, local public health experts need accurate data to plan and implement...
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Comparison of Demographics: National Amyotrophic Lateral Sclerosis Registry and Clinical Trials Data
ObjectiveTo characterize the participant demographics in the Pooled Resource Open-Access ALS Clinical Trials (PRO-ACT) database compared with the...
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The trends of antihypertensive drug prescription based on the Japanese national data throughout the COVID-19 pandemic period
In 2020, concerns arose about the potential adverse effects of angiotensin II type 1 receptor blockers (ARBs) and angiotensin-converting enzyme...
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National and regional prevalence rates of diabetes in Saudi Arabia: analysis of national survey data
BackgroundThe prevalence of diabetes mellitus (DM) has grown globally including Saudi Arabia. However, there are no recent national and regional...
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Expanding citizen engagement in the secondary use of health data: an opportunity for national health data access bodies to realise the intentions of the European Health Data Space
The European Health Data Space (EHDS) aims to make the primary use of health data for healthcare provision more continuous, effective, and (cost)...
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Whole genome sequencing for inherited retinal diseases in the Korean National Project of Bio Big Data
PurposeThis study aimed to analyze the genetic results of inherited retinal diseases (IRDs) and evaluate the diagnostic usefulness of whole genome...
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The prediction of influenza-like illness using national influenza surveillance data and Baidu query data
BackgroundSeasonal influenza and other respiratory tract infections are serious public health problems that need to be further addressed and...
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How do healthcare providers use national audit data for improvement?
BackgroundSubstantial resources are invested by Health Departments worldwide in introducing National Clinical Audits (NCAs). Yet, there is variable...
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Childhood interstitial lung disease in Turkey: first data from the national registry
AbstractThe childhood interstitial lung diseases (chILD) Turkey registry (chILD-TR) was established in November 2021 to increase awareness of...
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Understanding Pathways into Care-homes using Data (UnPiCD study): a two-part model to estimate inpatient and care-home costs using national linked health and social care data
BackgroundPathways into care-homes have been under-researched. Individuals who move-in to a care-home from hospital are clinically distinct from...
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Comprehensive assessment of TDP-43 neuropathology data in the National Alzheimer’s Coordinating Center database
TDP-43 proteinopathy is a salient neuropathologic feature in a subset of frontotemporal lobar degeneration (FTLD-TDP), in amyotrophic lateral...
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Efficient pathway for men fertility preservation in testicular cancer or lymphoma: a cross-sectional study of national 2018 data
BackgroundIn 15–49 years-old men, the main cancers are testicular cancer (TC) and lymphomas (L): freezing of ejaculated sperm is primarily used for...
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Socioeconomic representativeness of Australian, Canadian and British cohorts from the paediatric diabetes AdDIT study: comparisons to regional and national data
BackgroundGiven limited data regarding the involvement of disadvantaged groups in paediatric diabetes clinical trials, this study aimed to evaluate...
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Data quality considerations for evaluating COVID-19 treatments using real world data: learnings from the National COVID Cohort Collaborative (N3C)
BackgroundMulti-institution electronic health records (EHR) are a rich source of real world data (RWD) for generating real world evidence (RWE)...
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Examining Intimate Partner Violence-Related Fatalities: Past Lessons and Future Directions Using U.S. National Data
PurposeAmong homicides in the United States, intimate partners kill almost 50% of female and 10% of male victims. Intimate partner violence (IPV)...
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Machine learning algorithms using national registry data to predict loss to follow-up during tuberculosis treatment
BackgroundIdentifying patients at increased risk of loss to follow-up (LTFU) is key to develo** strategies to optimize the clinical management of...
