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SARS-CoV-2 infection during pregnancy and the risk of adverse maternal outcomes in the Republic of Georgia: a national birth registry-based cohort study
BackgroundGeorgia experienced an increase in maternal deaths (MD) during the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic,...
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Birth defect co-occurrence patterns in the Texas Birth Defects Registry
BackgroundThe population-level landscape of co-occurring birth defects among infants without a syndromic diagnosis is not well understood.
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Implementation of thyroid eye disease registry in Iran: rationale and research protocol
BackgroundTo describe the implementation of a registry system for patients with thyroid eye disease (TED) in Iran to obtain more information about...
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A multidisciplinary obesity registry for Iranian adults: a protocol
PurposeObesity is a global health challenge due to its high prevalence and increased related morbidity and mortality. Accordingly, creating a...
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Analysis of Pregnancy Outcomes Following Exposure to Intramuscular Interferon Beta-1a: The AVONEX® Pregnancy Exposure Registry
Background and ObjectivesThere is a lack of well-controlled US studies of intramuscular (IM) interferon beta (IFNβ)-1a use in pregnant women with...
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Danish Prostate Registry (DanProst) – an Updated Version of the Danish Prostate Cancer Registry, Methodology, and Early Results
In 2016, we introduced the Danish Prostate Cancer Registry (DaPCaR) which was built on the National Pathology Register from 1995 to 2011. DaPCaR was...
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Birth weight and birth length affect future fracture risk differently in men and women
SummaryWe wanted to determine if there are any associations between birth factors and adult fracture risk. For women only, shorter birth length was...
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Structure and establishment of the German Cochlear Implant Registry (DCIR)
Hearing rehabilitation of patients with severe hearing loss or deafness using cochlear implants (CI) is a very successful but also complex and...
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Investigating significant health trends in growth hormone treatments registry: rationale, aims and design of a nationwide prospective registry (study protocol)
BackgroundSomatropin treatment is indicated in a variety of disorders including growth hormone (GH) deficiency, Prader–Willi and Turner syndrome,...
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Association between first birth caesarean delivery and adverse maternal-perinatal outcomes in the second pregnancy: a registry-based study in Northern Tanzania
BackgroundCaesarean delivery (CD) is the commonest obstetric surgery and surgical intervention to save lives of the mother and/or the new-borns....
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Association of preterm birth and birth size status with neurodevelopmental and psychiatric disorders in spontaneous births
Preterm birth (PTB) or small birth size are risk factors for certain neurodevelopmental disorders. The magnitude of these associations in spontaneous...
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Maternal and perinatal outcomes of women with vaginal birth after cesarean section compared to repeat cesarean birth in select South Asian and Latin American settings of the global network for women’s and children’s health research
ObjectiveOur objective was to analyze a prospective population-based registry including five sites in four low- and middle-income countries to...
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The impact of placental genomic risk for schizophrenia and birth asphyxia on brain development
The placenta plays a role in fetal brain development, and pregnancy and birth complications can be signs of placental dysfunction. Birth asphyxia is...
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The establishment of a multiple myeloma clinical registry in the Asia–Pacific region: The Asia–Pacific Myeloma and Related Diseases Registry (APAC MRDR)
BackgroundMultiple myeloma (MM) is the second most common haematological cancer worldwide. Along with related diseases including monoclonal...
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Hydrops and congenital diaphragmatic hernia: reported incidence and postnatal outcomes. Analysis of the congenital diaphragmatic hernia study group registry
ObjectiveCongenital Diaphragmatic Hernia (CDH) associated with hydrops is rare. The aim of this study was to describe the incidence of this...
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Japan Ocular Imaging Registry: a national ophthalmology real-world database
In 2017, the Japanese Ophthalmological Society (JOS) created the Japan Ocular Imaging (JOI) registry, a national database of images and clinical data...
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The prevalence of preterm and low birth weight infants among migrant women in the Pearl River Delta region, China: a population-based birth cohort study
BackgroundThe existing literature evaluating the association between neonatal morbidity and migrant status presents contradictory results. The...
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COVID-19 vaccine registry for pregnant women: policy to control complications of vaccination in pregnant women in 2021–2022
BackgroundData management related to COVID-19 vaccination in pregnant women is vital to improve the treatment process and to establish preventive...
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Validation of birth certificate and maternal recall of events in labor and delivery with medical records in the Iowa health in pregnancy study
BackgroundEpidemiological research of events related to labor and delivery frequently uses maternal interview or birth certificates as a primary...
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Guidance to develop a multidisciplinary, international, pediatric registry: a systematic review
AimThe European Reference Network for craniofacial anomalies and ear, nose and throat disorders (ERN-CRANIO) aims to improve craniofacial care on a...
