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An Overview of Data Collection in Health Preference Research
This paper focuses on survey administration and data collection methods employed for stated-preference studies in health applications. First, it...
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Harnessing big data for health equity through a comprehensive public database and data collection framework
The United States Department of Health and Human Services (HHS) pledged $90 million to help reduce health disparities with data-driven solutions. The...
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Expanding Education Researchers’ Access to Classroom Observation Data With a Remote and Cost-Effective Video Data Collection Protocol
The onset of the COVID-19 pandemic and associated long-term shifts to virtual instruction among most US schools presented notable challenges among...
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Electronic aggregated data collection on cervical cancer screening in Bangladesh since 2014: what the data tells us?
IntroductionTo reduce the high prevalence of cervical cancers among the Bangladeshi women, the Government of Bangladesh established a national...
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Comorbidity data collection across different spine registries: an evidence map
IntroductionComorbidities are significant patient factors that contribute to outcomes after surgery. There is highly variable collection of this...
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An Analysis of Uncertainties and Data Collection Agreements in the Cancer Drugs Fund
BackgroundManaged Access Agreements (MAAs) are a commercial arrangement that provide patients earlier access to innovative health technologies while...
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Core Data Elements for Pregnancy Pharmacovigilance Studies Using Primary Source Data Collection Methods: Recommendations from the IMI ConcePTION Project
Introduction and ObjectiveThe risks and benefits of medication use in pregnancy are typically established through post-marketing observational...
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Understanding social needs screening and demographic data collection in primary care practices serving Maryland Medicare patients
BackgroundHealth outcomes are strongly impacted by social determinants of health, including social risk factors and patient demographics, due to...
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Edmonton’s Race-based Data Table: A municipal approach to addressing systemic racism through the collection and use of disaggregated, race-based data
Recent events, such as the COVID-19 pandemic, have drawn nationwide attention to systemic racism as a serious threat to public health in Canada. One...
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The impact of electronic versus paper-based data capture on data collection logistics and on missing scores in thyroid cancer patients
PurposeThe purpose of this study was to investigate the impact of the type of data capture on the time and help needed for collecting...
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Making Oneself “Fit”: Community Perspectives on Disaggregated Race and Ethnicity Data Collection and Reporting in Healthcare Settings
Patient race/ethnicity data collection in most U.S. health systems abide by federal standards, determined by the federal Office of Management and...
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How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies
BackgroundPeople with dementia are routinely included as research participants in trials and other quantitative studies in which they are invited to...
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Commonalities and differences in set-up and data collection across European spondyloarthritis registries — results from the EuroSpA collaboration
BackgroundIn European axial spondyloarthritis (axSpA) and psoriatic arthritis (PsA) clinical registries, we aimed to investigate commonalities and...
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Data collection in pandemic times: the case of the Belgian COVID-19 health surveys
BackgroundSurvey data were needed to assess the mental and social health, health related behaviors and compliance with preventive measures of the...
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Collection and Use of Social Determinants of Health Data in Inpatient General Internal Medicine Wards: A Sco** Review
BackgroundThere is growing interest in incorporating social determinants of health (SDoH) data collection in inpatient hospital settings to inform...
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Extending the data collection from a clinical trial: The Extended Salford Lung Study research cohort
The Extended Salford Lung Study (Ext-SLS) is an extension of the Salford Lung Studies (SLS) in asthma and chronic obstructive pulmonary disease...
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Increasing disclosure of school-related gender-based violence: lessons from a systematic review of data collection methods and existing survey research
BackgroundSchool-related gender-based violence (SRGBV) includes sexual, physical or psychological violence occurring in and around schools often...
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Usability of novel major TraumaApp for digital data collection
BackgroundDelivery of major trauma care is complex and often fast paced. Clear and comprehensive documentation is paramount to support effective...
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The design, implementation, and impact of an automated patient-reported outcome data collection and adverse event surveillance tool: a randomized trial
BackgroundIncorporating patient-reported outcome measures into routine clinical care can improve the patient experience, increase engagement, and...
