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Assessing health state utilities for people with myalgic encephalomyelitis/chronic fatigue syndrome in Australia using the EQ-5D-5L, AQoL-8D and EQ-5D-5L-psychosocial instruments
PurposeMyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic condition with a constellation of symptoms presenting as severe and...
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QALYs and rare diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia
BackgroundGenomic testing transforms the diagnosis and management of rare conditions. However, uncertainty exists on how to best measure genomic...
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Map** the 12-item World Health Organization disability assessment schedule 2.0 (WHODAS 2.0) onto the assessment of quality of life (AQoL)-4D utilities
PurposeThe World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) is a widely used disability-specific outcome measure. This study...
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Assessment of health-related quality of life in Australian patients with idiopathic pulmonary fibrosis: a comparison of the EQ-5D-5L and the AQoL-8D
PurposeIdiopathic pulmonary fibrosis (IPF) is a progressive and debilitating chronic lung disease with a high symptom burden, which has a substantial...
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Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Background and aimsRelapses are an important clinical feature of multiple sclerosis (MS) that result in temporary negative changes in quality of life...
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Validation of AQoL-8D: a health-related quality of life questionnaire for adult patients referred for otolaryngology
PurposeThe purpose of the study was to validate the AQoL-8D questionnaire in the adult population of patients referred to an otolaryngology clinic.
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Assessing the validity and responsiveness of a generic preference quality of life measure in the context of posttraumatic stress disorder
PurposeThere is limited research exploring the usefulness of generic preference-based quality of life (GPQoL) measures used to facilitate economic...
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Evaluating health-related quality of life and subjective wellbeing among infertility patients: a cross-sectional study in mainland China
PurposeThis study aimed to explore the health-related quality of life (HRQoL) and subjective wellbeing (SWB) of infertility patients in...
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Map** the Minnesota Living with Heart Failure Questionnaire (MLHFQ) onto the Assessment of Quality of Life 8D (AQoL-8D) utility scores
PurposeThe Minnesota Living with Heart Failure Questionnaire (MLHFQ) is a widely used condition-specific measure of quality of life (QoL) in patients...
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Psychometric properties and comparison of four health utility approaches among myopia patients in China
BackgroundThe increased prevalence of myopia creates and earlier age of onset has created public health concerns for the long-term eye health, vision...
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Validation of the EQ-5D-5L and psychosocial bolt-ons in a large cohort of people living with multiple sclerosis in Australia
BackgroundMultiple sclerosis (MS) is an inflammatory, neurodegenerative disease of the central nervous system which results in disability over time...
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Comparative Psychometric Performance of Common Generic Paediatric Health-Related Quality of Life Instrument Descriptive Systems: Results from the Australian Paediatric Multi-Instrument Comparison Study
ObjectiveThe aim of this study was to compare the psychometric performance of common generic paediatric health-related quality-of-life instrument...
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The quality of life impact of the COVID-19 pandemic and lockdowns for people living with multiple sclerosis (MS): evidence from the Australian MS Longitudinal Study
PurposePeople living with multiple sclerosis (PwMS) in metropolitan Victoria, Australia, experienced a 112-day, COVID-19-related lockdown in...
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Comparing the Psychometric Performance of Generic Paediatric Health-Related Quality of Life Instruments in Children and Adolescents with ADHD, Anxiety and/or Depression
ObjectiveThe aim of this study was to examine the validity, reliability and responsiveness of common generic paediatric health-related quality of...
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Knochenleitungsimplantat mit selbstbohrenden Schrauben
BackgroundThe active transcutaneous bone conduction implant (tBCI; BONEBRIDGE™ BCI 601; MED-EL, Innsbruck, Austria) is fixed to the skull with two...
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A bone conduction implant using self-drilling screws
BackgroundThe active transcutaneous bone conduction implant (tBCI; BONEBRIDGE™ BCI 601; MED-EL, Innsbruck, Austria) is fixed to the skull with two...
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Comprehensive Analysis of Improvements in Health-Related Quality of Life and Establishment of QALY Gains in a Government-Funded Bariatric Surgical Program with 5-Year Follow-up
PurposeBariatric surgery is an efficacious intervention for substantial and sustained weight reduction in individuals with morbid obesity resulting...
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The bone conduction implant BONEBRIDGE increases quality of life and social life satisfaction
PurposeTranscutaneous active bone conduction hearing aids represent an alternative approach to middle ear surgery and conventional hearing aids for...
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Psychometric Properties of Generic Preference-Weighted Measures for Children and Adolescents: A Systematic Review
IntroductionPreference-weighted measures (PWMs)—also referred to as preference-based measures in the literature—of health status/health-related...
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Validation and comparison of five preference-based measures among age-related macular degeneration patients: evidence from mainland China
PurposeTo compare the psychometric properties of five preference-based measures (PBMs) among patients with age-related macular degeneration (AMD) in...