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Active involvement in scientific research of persons living with dementia and long-term care users: a systematic review of existing methods with a specific focus on good practices, facilitators and barriers of involvement
BackgroundActive involvement of persons living with dementia (PLWD) and long-term care (LTC) users in research is essential but less developed...
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The Bridge Building Model: connecting evidence-based practice, evidence-based research, public involvement and needs led research
This paper describes a model developed by an interdisciplinary team of research and public engagement specialists, with backgrounds in health and...
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Patient involvement in rare diseases research: a sco** review of the literature and mixed method evaluation of Norwegian researchers’ experiences and perceptions
BackgroundPatients’ involvement (PI) in research is recognized as a valuable strategy for increasing the quality, develo** more targeted research...
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Inclusive approaches to involvement of community groups in health research: the co-produced CHICO guidance
BackgroundRacially marginalised groups are underserved in healthcare and underrepresented in health research. Patient and public involvement and...
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Exploring barriers and solutions to consumer involvement in health service research using a nominal group technique
BackgroundConsumer involvement in health research is when patients, their families and caregivers work with researchers on research projects. Despite...
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Develo** and testing guidance to support researchers engaging patient partners in health-related research
BackgroundAlthough interest in Patient and Public Involvement in health-related research is growing, there seems to be a lack of guidance supporting...
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Develo** Data Sharing Models for Health Research with Real-World Data: A Sco** Review of Patient and Public Preferences
For researchers to realize the benefits of real-world data in healthcare requires broader access to patient data than is currently possible given...
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The role of patient and public involvement and engagement (PPIE) within the development of the EQ Health and Wellbeing (EQ-HWB)
ObjectivesThe value of patient and public involvement and engagement (PPIE) within the development and refinement of outcome measures is becoming...
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Postpartum psychosis: a public involvement perspective across three continents
Postpartum psychosis is a psychiatric emergency that is currently not represented in diagnostic systems, to the detriment of people with lived...
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Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers
BackgroundThis study was initiated and co-designed by a Participant and Public Involvement (PPI) group attached to HOMESIDE, a randomized controlled...
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Doing community-based research during dual public health emergencies (COVID and overdose)
Meaningful engagement and partnerships with people who use drugs are essential to conducting research that is relevant and impactful in supporting...
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Patient engagement in a national research network: barriers, facilitators, and impacts
BackgroundLittle is known about patient engagement in the context of large teams or networks. Quantitative data from a larger sample of CHILD-BRIGHT...
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Google search data as a novel adjunct to patient and public involvement in rheumatology research
Patient and public involvement is essential in the design and implementation of research studies to ensure research remains relevant and in line with...
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Positioning patients to partner: exploring ways to better integrate patient involvement in the learning health systems
Globally, health systems are increasingly striving to deliver evidence based care that improves patients’, caregivers’ and communities’ health...
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Patient and Public Involvement (PPI) in Health Economics Methodology Research: Reflections and Recommendations
Patient and public involvement (PPI) can be used in methods research, as well as applied research, in health economics. However, methods research...
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Patient and family involvement in Choosing Wisely initiatives: a mixed methods study
BackgroundPatients are important stakeholders in reducing low-value care, yet mechanisms for optimizing their involvement in low-value care remain...
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Develo** a national strategy of consumer and community involvement (CCI) for women’s health research
ObjectiveTo develop a consumer and community involvement (CCI) strategy for the Women’s Health Research, Translation and Impact Network (WHRTN), an...
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Evaluation of the quality of patient involvement in a patient-led analysis of the lived experience of a rare disease
BackgroundPatients themselves are best placed to provide insights on the lived experience and to lead the analysis of such insights to bring the...
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Priority setting to support a public health research agenda: a modified Delphi study with public health stakeholders in Germany
BackgroundResearch priority setting (RPS) studies are necessary to close the significant gap between the scientific evidence produced and the...
