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Unmet supportive care needs among informal caregivers of patients with head and neck cancer in the first 2 years after diagnosis and treatment: a prospective cohort study
ObjectiveInformal caregivers of head and neck cancer (HNC) patients have a high caregiver burden and often face complex practical caregiving tasks....
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Level of caregiving burden and affecting factors in family caregivers of patients with lung cancer: A cross-sectional study
PurposeTo determine the caregiving burden level and affecting factors of family members caring for patients with lung cancer (LC).
Methods ... -
Informal Hel** and Subsequent Health and Well-Being in Older U.S. Adults
BackgroundGrowing evidence suggests that informal hel** (unpaid volunteering not coordinated by an organization or institution) is associated with...
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“It’s a stressful, trying time for the caretaker”: an interpretive description qualitative study of postoperative transitions in care for older adults with frailty from the perspectives of informal caregivers
BackgroundOlder adults with frailty have surgery at a high rate. Informal caregivers often support the postoperative transition in care. Despite the...
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A qualitative study of informal caregiver perceptions of the benefits of an early dementia diagnosis
BackgroundCurrent and former dementia policies in the United Kingdom (UK) recommend diagnosing dementia early, or as close to the onset of symptoms...
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Predictors of psychoneurological symptoms in cancer caregivers over time: Role of caregiving burden, stress, and patient symptoms
PurposeIn cancer patients, stress is associated with a psychoneurologic (PN) symptom cluster of depressed mood, anxiety, pain, fatigue, and sleep...
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Making visible the cost of informal caregivers’ time in Latin America: a case study for major cardiovascular, cancer and respiratory diseases in eight countries
BackgroundInformal care is a key element of health care and well-being for society, yet it is scarcely visible and rarely studied in health economic...
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The Challenges of Measuring Informal Care Time: A Review of the Literature
Economic evaluations increasingly include the value of informal care, for example, in terms of caregiver health effects or time costs. If an economic...
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Protective factors for adolescent sexual risk behaviours and experiences linked to HIV infection in South Africa: a three-wave longitudinal analysis of caregiving, education, food security, and social protection
BackgroundStructural interventions are endorsed to enhance biomedical and behavioural HIV prevention programmes for adolescents. Aiming to inform...
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Gendered experiences of providing informal care for older people: a systematic review and thematic synthesis
Background and purposeThe caregiving’s impact on informal carers’ quality of life and gender-based stereotypes make older individuals’ informal care...
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WHO, WHEN, HOW: a sco** review on flexible at-home respite for informal caregivers of older adults
BackgroundAs the world population is aging, considerable efforts need to be put towards develo** and maintaining evidenced-based care for older...
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Quality of life outcomes for informal carers of long-term care service users in Austria, England and Finland
PurposeThe provision and funding of long-term care (LTC) for older people varies between European countries. Despite differences, there is limited...
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Informal Care Costs According to Age and Proximity to Death to Support Cost-Effectiveness Analyses
BackgroundCosts of informal care are ignored in many cost-effectiveness analyses (CEAs) conducted from a societal perspective; however, these costs...
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Strategies for engaging older adults and informal caregivers in health policy development: A sco** review
BackgroundCare for older adults is high on the global policy agenda. Active involvement of older adults and their informal caregivers in...
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Digital peer-to-peer support programme for informal caregivers of people living with motor neuron disease: study protocol for a multi-centre parallel group, single-blinded (outcome assessor) randomised controlled superiority trial
BackgroundPeer support is effective in improving psychological well-being of family caregivers of people with conditions such as dementia, cancer,...
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Activities of daily living limitations and the use of physical examination among older adults with informal care in China: do gender and residence make differences?
BackgroundThis study investigated the relationship between activities of daily living (ADL) limitations and the use of physical examination among...
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The correlation between caregiver burden with depression and quality of life among informal caregivers of hemodialysis and thalassemia patients during the COVID-19 pandemic: a cross-sectional study
BackgroundLifelong provision of care to chronically ill patients increase the risk of physical and mental diseases in informal caregivers and...
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Willingness to provide informal care to older adults in Germany: a discrete choice experiment
As the German population is continually aging and the majority of older adults still wish to ‘age in place’, the need for informal care provided by...
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Unpaid caregiving for people following hip fracture: longitudinal analysis from the English Longitudinal Study of Ageing
PurposeTo determine the provision and its change over time in unpaid care for people following hip fracture.
MethodsData were sought from the...
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Family members’ experiences of everyday caregiving for a family member living with Parkinson’s disease: a qualitative thematic analysis study
BackgroundIn the daily life of individuals living with Parkinson's disease, their loved ones are crucial. Adapting family members to the patient's...