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Article
Implementation of electronic Patient Reported Outcomes in pediatric daily clinical practice: the KLIK experience
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Article
Open AccessIllness cognitions and family adjustment: psychometric properties of the Illness Cognition Questionnaire for parents of a child with cancer
Illness cognitions are an important mediator between disease and psychological adjustment. This study assessed the psychometric properties of the Illness Cognition Questionnaire (ICQ), adjusted for the parents...
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Article
Open AccessDutch normative data and psychometric properties for the Distress Thermometer for Parents
The aim of this study was to provide Dutch normative data for the Distress Thermometer for Parents (DT-P) and to assess internal consistency and known-groups validity.
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Article
Open AccessFirst experience with electronic feedback of the Psychosocial Assessment Tool in pediatric cancer care
The Psychosocial Assessment Tool (PAT) is a brief family screener, identifying families at universal or elevated risk for psychosocial problems. This study aimed to determine the feasibility and usability of t...
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Article
Open AccessBarriers and facilitators to the implementation of a paediatric palliative care team
Over the last decade, paediatric palliative care teams (PPCTs) have been introduced to support children with life-limiting diseases and their families and to ensure continuity, coordination and quality of paed...
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Article
Youth and parent perceptions of parenting in childhood cancer survivors and healthy peers
Having a child diagnosed with cancer may have a long-term impact on parenting practices. The aims of this study were to (a) examine possible differences in youth and parent perceptions of parenting between chi...
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Article
Open AccessDeterminants of health-related quality of life proxy rating disagreement between caregivers of children with cancer
Proxy reports of health-related quality of life (HRQoL) are commonly used in pediatric oncology. However, it is not known if caregivers’ reports differ. This study therefore aims to compare paternal and matern...
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Article
Open AccessA retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR)
The KLIK Patient-Reported Outcome Measure (PROM) portal is an evidence-based intervention implemented in clinical practice in > 25 Dutch hospitals for patients (children and adults) who regularly visit the out...
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Article
Open AccessReducing pain in children with cancer at home: a feasibility study of the KLIK pain monitor app
This study assessed adherence to, feasibility of, and barriers and facilitators of implementation of an app developed to monitor and follow-up with pain in children with cancer at home.