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  1. Article

    Open Access

    Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life

    There is a major need for longitudinal research examining the experiences of people with dementia and their primary carers, as relatively little is known about how the factors associated with capability to ‘li...

    Barbora Silarova, Sharon M. Nelis, Rosalie M. Ashworth, Clive Ballard in BMC Public Health (2018)

  2. No Access

    Chapter

    Dementia and the Nature of Mind

    ‘Dementia’ suggests that the person is out of his or her mind. This is stigmatizing, especially given that, even into severe dementia, there is evidence that the person living with dementia remains minded. But...

    Julian C. Hughes in The Palgrave Handbook of the Philosophy of Aging (2016)

  3. No Access

    Chapter

    The Physiology and Psychology of Aging: Should Aging Be Successful or Authentic?

    The chapter starts by describing aging in terms of its underlying physiology, moving from the level of cells to organs and the organism as a whole. After a description of cell damage and repair, the discussion...

    Julian C. Hughes in The Palgrave Handbook of the Philosophy of Aging (2016)

  4. No Access

    Reference Work Entry In depth

    Dementia

    Dementia is a global problem. It is an increasing concern as populations age, especially in the low- and middle-income countries where the prevalence will rise the most. But it is a conceptually complex notion...

    Julian C. Hughes in Encyclopedia of Global Bioethics (2016)

  5. Article

    Open Access

    Going home? An ethnographic study of assessment of capacity and best interests in people with dementia being discharged from hospital

    A significant proportion of patients in an acute hospital is made up of older people, many of whom have cognitive impairment or dementia. Rightly or wrongly, if a degree of confusion is apparent, it is often q...

    Marie Poole, John Bond, Charlotte Emmett, Helen Greener, Stephen J Louw in BMC Geriatrics (2014)

  6. No Access

    Living Reference Work Entry In depth

    Dementia

    Dementia is a global problem. It is an increasing concern as populations age, especially in the low- and middle-income countries where the prevalence will rise the most. But it is a conceptually complex notion...

    Julian C. Hughes in Encyclopedia of Global Bioethics

  7. No Access

    Article

    The Challenges of Providing Palliative Care for Older People with Dementia

    Palliative care seems the right approach to dementia, except that it suggests a dichotomy between cure and care. As in cancer care, supportive care provides a broader framework, viewing dementia from the time ...

    Anita-Luise Küpper, Julian C. Hughes in Current Oncology Reports (2011)

  8. No Access

    Article

    Types of centredness in health care: themes and concepts

    Background For a variety of sociological reasons, different types of centredness have become important in health and social care. In trying to characterize one type of centredness, we wer...

    Julian C. Hughes, Claire Bamford, Carl May in Medicine, Health Care and Philosophy (2008)

  9. Article

    Open Access

    Appropriate disclosure of a diagnosis of dementia: identifying the key behaviours of 'best practice'

    Despite growing evidence that many people with dementia want to know their diagnosis, there is wide variation in attitudes of professionals towards disclosure. The disclosure of the diagnosis of dementia is in...

    Jan Lecouturier, Claire Bamford, Julian C Hughes in BMC Health Services Research (2008)

  10. Article

    Open Access

    A trial platform to develop a tailored theory-based intervention to improve professional practice in the disclosure of a diagnosis of dementia: Study protocol [ISRCTN15871014]

    For people with dementia, care should include an explanation of the diagnosis to individuals and their carers, and information about the likely prognosis and possible packages of care. However, this is neither...

    Martin P Eccles, Robbie Foy, Claire H Bamford, Julian C Hughes in Implementation Science (2006)