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  1. Article

    Open Access

    Health-Related Quality-of-Life Impacts Associated with Transfusion-Dependent β-Thalassemia in the USA and UK: A Qualitative Assessment

    Individuals living with transfusion-dependent β-thalassemia (TDT) experience reduced health-related quality of life due to fatigue and chronic pain, which cause disruptions to daily life. Currently, limited qu...

    Jennifer Drahos, Adriana Boateng-Kuffour in The Patient - Patient-Centered Outcomes Re… (2024)

  2. Article

    Open Access

    Appropriateness of the EQ-5D-5L in capturing health-related quality of life in individuals with transfusion-dependent β-thalassemia: a mixed methods study

    Individuals with transfusion-dependent β-thalassemia (TDT) experience symptoms and functional impacts that reduce their health-related quality of life. However, EQ-5D-derived health utility index scores in TDT...

    Adriana Boateng-Kuffour, Hanna Skrobanski in Health and Quality of Life Outcomes (2024)

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