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Voeding bij neuromusculaire aandoeningen

April 2017

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Informatorium voor Voeding en Diëtetiek

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Samenvatting

Neuromusculaire aandoeningen ofwel spierziekten omvatten een groot aantal ziekten met verscheidenheid in oorzaak, symptomen en verloop. De meeste ziekten zijn zeldzaam, progressief en de multidisciplinaire behandeling is voornamelijk symptomatisch. De aard en ernst van voedingsgerelateerde problemen wordt duidelijk gemaakt aan de hand van drie ziektebeelden: amyotrofische laterale sclerose, myotone dystrofie type 1 en Duchenne-spierdystrofie. De specifieke aspecten van dysfagie, motiliteitsstoornissen, voedingsstoma, ademhalingsinsufficiëntie en secundaire problematiek op de voedingstoestand worden nader uitgewerkt. Kerndoelen van de diëtistische behandeling zijn het verbeteren/behouden van een goede voedingstoestand, goede groei en het verbeteren/behouden van de kwaliteit van leven evenals het verminderen van symptomen bij dysfagie en gastro-intestinale stoornissen.

Met dank aan dr. L. van den Engel, logopedist Radboudumc, en netwerkleden Diëtisten voor Spierziekten: mw. D. Schröder, mw. M. Rubay Bouman en mw. B. Rave.

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Notes

  1. 1.

    ALSFRS-R-score staat voor de gereviseerde ALS functional rating scale, een meetinstrument voor functieverlies bij ALS. De zes items zijn spraak, schrijven, aankleden, omdraaien in bed, lopen en benauwdheid. De volledige formules voor mannen en vrouwen met de zes items staan op de site van Diëtisten voor Spierziekten (www.dietistenvoorspierziekten.nl) bij nieuws per diagnose, ALS, op chronologische volgorde.

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  1. Verbonden aan Spierziekten Nederland, Baarn, The Netherlands

    J. C. Wijnen (Diëtist)

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  1. J. C. Wijnen
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  1. Almere, The Netherlands

    Majorie Former

  2. Delft, The Netherlands

    Gerdie van Asseldonk

  3. Garrelsweer, The Netherlands

    Jacqueline Drenth

  4. Almere, The Netherlands

    Gerdien Ligthart-Melis

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Wijnen, J.C. (2017). Voeding bij neuromusculaire aandoeningen. In: Former, M., van Asseldonk, G., Drenth, J., Ligthart-Melis, G. (eds) Informatorium voor Voeding en Diëtetiek. Bohn Stafleu van Loghum, Houten. https://doi.org/10.1007/978-90-368-1774-5_5

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