Abstract
A population-based cancer registry (PBCR) is an ongoing surveillance system to collect, store, manage, analyse and disseminate information on the occurrence of cancer in a defined population. Modern cancer registration started in Europe in the 1930s and 1940s. PBCRs gradually developed over the following decades and have now become the best tools for measuring the burden of cancer in the community. In addition, PBCRs, nowadays, are considered critically important for planning and evaluation of National Cancer Control Plans, in the field of primary and secondary prevention, diagnostics, treatment and rehabilitation, and also when it comes to planning for facilities and funding needed for cancer control as well as for clinical and epidemiological research, including regional and international multi-centric studies. Currently, there are 24 out of 40 European countries with complete population coverage; partial registration has been introduced in 10 countries, and only 6 countries have no registries. Sixty per cent of the European population is covered by population-based cancer registration. In 1990, the European Network of Cancer Registries (ENCR; www.encr.eu) was established to promote collaboration between cancer registries, define data collection standards, provide training for cancer registry personnel and regularly disseminate information on incidence and mortality from cancer in Europe. ENCR is supported by the European Commission’s Joint Research Centre.
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Grosclaude, P., Zadnik, V. (2021). Population-Based Cancer Registries: A Data Stream to Help Build an Evidence-Based Cancer Policy for Europe and for European Countries. In: Launoy, G., Zadnik, V., Coleman, M.P. (eds) Social Environment and Cancer in Europe. Springer, Cham. https://doi.org/10.1007/978-3-030-69329-9_2
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